jayjay

Thank you all for your words of encouragement!

I do know what you mean, I'm already part of the stillborn baby group. I was hoping that was going to be the only group I would would have to join. I know from being a part of that group that sharing and caring is the only way to get through this. I have learned so much from everyone already. The best part is knowing that you are not alone and the support that is shown in these posts is truly unbelievable.

My 9 year old son had a major exacerbation when he got the nasal flu mist in Nov. Sounds silly, but I knew the minute we got home from the Dr. that we were in trouble. He had not been officially diagnosed with PANDAS at that time. The reaction he had to it was what finally lead us to his diagnosis.

OK, so I’ve been following these posts for a while now and I think it is finally time to join in realizing the only way to get through this is to learn and get strength from those that have walked the path before me and to help those that follow. My 9yr old son was recently diagnosed with PANDAS. The last five + years have been filled with guilt, regret, tears, and financial drain, trying to find answers. We even paid for parenting classes. He is my 5th child! Wow, was that dumb, but I think we have all been to the “I’ll do anything you say to make this nightmare go away” place. I took way too many trips down that road instead of listening to my heart. Last year was particularly hard after a two-week hospital stay that only left us with a son with PANDAS on Zoloft. It has taken a couple more months of ###### and a pediatrician that basically gave up on my son to push me to do what I heard my heart was telling me to do for a long time. We have finally found the right Dr. and hopefully my son is on the path back to health. As I brace myself for more ups and downs… I am glad I am here.