JAG10

Yes, I think organizations that have tons of names and emails willing to let people vote for them daily, just log in, open the profile and vote straight down. If you vote from your profile page, you can move to the next one without opening the individual team's page, so it would be much faster. I think that may be why some are commenting it takes too long to comment each time, but we're here. So it a group like TWR has a mega email list like that, they might just be voting for themselves and that's it.

Hmmm. I did notice the low comment number from TWR (cottage) and they won the 50K from March which also had low comments that didn't seem to represent support from other groups. So, it appears some large organizations are making a living at this game. SMA, TWR, Good Nights; shouldn't one win be the limit? But SKY U, I wonder out of those 450 how many are ours? More than half, I'm sure. Just don't know what it means. Maybe they don't bother commenting for themselves? They leave us a ton of comments (and hopefully votes) What do you think it means about their voters?

Are you kidding me, Vickie!!! I love your spunk, I don't want to see you calm down! I want to see you wrestle a lemur in Mule Muscles' new weight room I find myself typing things I never thought I'd ever think let alone put out on the www. OK, up top, I took down SMILE (they got a bunch of votes from us today) and Together We Rise didn't seem to bite either. I added Mule Muscles (Lhm) Fisher in the alternate group. Flagstaff- we seemed to get a few. Is that it?

Vickie- I think we are consistently sending JETT and SMILE votes. Fisher is 74th, so do you think it's possible they are planting seeds for June? SKY U has sent us a ton of votes. A few commented that we were moving up, but they are stuck. I'm sure in the top 10% everyone is working hard and very committed. WMS expressed some frustration this morning as well. The weekend seems to be prime time to ramp it up. Memorial Day Weekend will be key as well. I know it is unbecoming and small to sneer at the Lemurs, but these are our children for crying outloud!!!!

The LEMURS are back in the top 10! Keep voting, recruiting, signing people up.....

Was a decision every made about Philanthro 25K? There sure are sending Missing Patient a lot of votes and they are climbing Can we try a coordinated effort, say 12pm EST? Really make a statement if we're gonna push for Philanthro's support? Don't do it unless Vickie/Kelly confirm.

Has anyone heard anything from Flagstaff... I only saw two comments. We are all in agreement NOT to fall for the bait from other 50K groups, yes??? The other thread was getting really long, maybe we can let it drop off? PANDAS- ALWAYS VOTE US FIRST!!!!! WMS (25K)-#17 (stay with them) SKY U (250K)-#12 (stay with them) Sophie's cure (250K)- #9 (stay with them) *Stop SMA (25K)-#10 (stay with them) MULE MUSCLE (250K) Ride 192 (5K)- they are 26th??? *Ride MS (fairly secure at #6 spot, so don't need everybody) ? *Synergy SKIP (250K) Above are 9 suggestions. Those with * are either already in the top 10 or only have hopes of top 100, so those could be varied some For consideration: Autism Prog of IL (25K)-#11 (I think we are already sending votes this way, but not organized) FISHER Flagstaff Academy (5K)-#11 (seen them post high support for others, on the cusp)

Together We Rise bumped into the #2 spot in the $250K tonight. We sent them some today...

Do you have an idea of a ballpark time frame it takes to get FDA approval? Is there a goal number of CK tests her team needs to run before they submit to the FDA? How far do they have to go? I know several months ago someone posted they were running about 15/day. Do you know if that has changed any? Sorry if I'm being a pest, Kelly:) I'm just really curious since we get a little closer each day... Jill

"Attorney" works or "parent advocate" You need to ask for a copy of the Procedural Safeguards and all the phone numbers for complaints, grievances, parent advocate associations-free of charge, are all in there and they know it. Parents are in the driver's seat, they just don't always know it.

Vickie, Kelly, anyone familiar.... Do you have any idea how far 50K will go for Dr. Cunningham? What $$size funding has she had in the past? Do you know what her specific intentions are is it is won?

If you make a mistake with the password, try closing that whole white box completely and opening login again. I've had a similar experience where once you mis-type a password, it gets cranky.

Try a "tag" comment like... BAM!!!! You've just been hit with another PANDAS vote!!! Tag, You're it!!!!

We're in the top 10%! Everybody keep up the great work!! At what point during the month do you think folks in the bottom 50-75% start dropping off?

I think the notes help most with the teenagers; WMS, SKY U, Synergy, we'll see how Flagstaff responds. Especially when there isn't the sisterhood of disease connection.

T-Mom, great points! This is a brief status update I could gather... PANDAS- ALWAYS VOTE US FIRST!!!!! WMS (25K)-#17 (stay with them) SKY U (250K)-#12 (stay with them) Sophie's cure (250K)- #9 (stay with them) Stop SMA (25K)-#10 (stay with them) SMILE Autism (250K)- #13 Ride 192 (5K)- they are 26th??? Ride MS (fairly secure at #6 spot, so don't need everybody) Synergy For consideration: Autism Prog of IL (25K)-#11 (I think we are already sending votes this way, but not organized) New Cottage Foster Home (250K)-#3 (so many may be courting these guys, high stakes!! could also agree no votes for #1 or 2 in their category) #4 is some haunted house thing??? oiye! Flagstaff Academy (5K)-#11 (seen them post high support for others, on the cusp) I see a lot of comments out their by Eaton band, but they are only 60 and they are in the 50K group, but it looks suspicious. I also wonder how many of these are going to pass the smell test. Some have comments like "you can vote as many times as you want, just use different email addresses and names..." ..real smart to post those kinda comments, hmmm, maybe they are really the competition! So- Vickie, Kelly, T; do you want to give more direction, reach out to anybody specifically???

It looked to me like razzball was a fatasy baseball league for charity maybe? And Synergy is the charity? So, a razzball vote may very well be a Synergy vote, just with a different name to it. I have 7 adult members in my family voting and commenting everyday. I'll tell them all to add Synergy today. Bipolar unseen, looks out of it, that's a shame. Also Ride MS is doing pretty well, I think #6, so that's one we could circulate and hopefully they won't freefall, but make sure you comment, especially those PANDAS folks with MS family members like us:) SKY U and WMS continue to be very faithful to us.

http://razzball.com/ Are razzball and synergy the same thing?

I couldn't find anything searching razzball...

How FUNNY! I googled pepsi refresh strategy and Latitudes Survivor strategy was the 20th entry!!! Most of the ones before that related to Pepsi's marketing campaign to skip superbowl. There was one article about a small non-profits strategy that stated Pepsi does not share voting data with the participants.

Vickie and Kelly, I was looking up the folks listed at the top as the winners for April and taking a look at their comments which several are recent this month. Some interesting info there... I was specifically looking at the ones on the bottom; 8,9,10, that just made it like Hartwood Elem. Ouch, it gets a little ugly in the end!!! But there is a lot of strategy spelled out there. One group claiming to have channelled 1200 votes on the last day. I have no idea how these folks have any idea as to the numbers unless that info is posted somewhere else? Heck, maybe we should just google Pepsi refresh strategy and see what pops up???

Let's say a group was in the top ten for the 25K category for April. Although they are probably really excited, they won't know for sure if their votes are all approved or verified or whatever until a few weeks into May. So their leaders may be saying something like.."we need to keep voting like we didn't make it into the top ten just in case some votes are disqualified for whatever reason and we don't end up with a grant. Once we get official word we did win a top ten 25K grant, then we can stop voting." So, if we know who those folks are from April, maybe we can get them to support us? That may also result in some shifting after the April announcements are made? Is that how it worked last month? Sorry, I didn't start paying attention until this month!

Uhh! I jinxed us, 32nd. VOTE VOTE VOTE!!! Vickie-another ? You said you don't find out who wins the previous month until a couple weeks into the next month. So, as far as they know, they've rolled over to the next month and have to keep voting, right? So, when we find out who the winners are, maybe we can solicite those votes?

Okay Synergy is added up top. Have you noticed we are being courted by many more 250K groups than 5 or 25? I mean, Synergy is ranked 127th now and only the top 2 get the grant in that category, right? I guess they are going for the top 100 to make it to next month (maybe that's analogous to the immunity challenge?) The Bipolar group is like 225th.... We should watch out for more 25K groups; WMS has been awesome. I looked on there comments and they get a lot of support from other middle and high school groups, like for band instruments ect. Maybe the teenagers are the way to go... more time on their hands, tech savvy, IDK. SKY U has also been pretty faithful. We made AWESOME headway this weekend, solidly 31st all day!!!

You know, Vickie, I don't know what to make of some of the comments left on our page like this one... Skip Program is getting ready to start our climb for kids. It will start at 3:30. Your current standing is 31. The goal set for your program is 25 (by mid***ht). What is with all the *** in the middle of "clean" words? I suppose some organizations are set up so that some people are "in charge" of a block of emails and votes, but really-who knows! PANDAS has genuine friends we assume are voting although we don't see their names in the comments anywhere and that's fine. It's just too hard to make any assumptions. Some groups are clearly getting our support and giving theirs. THe animal folks seem to be sticking pretty tightly together. Maybe we could use the acronym to our advantage and sneak in under the bear ruse....