JAG10

You can call them back and ask for Jade and say you were waiting for the physician to renew the contract.....or try priceline.

That was me. Put it up there! I rank with Singer and Kurlan to throw in my two cents....after all, I went to medical school at the University of Google

I'm not sure if there is an update, but we were at DoubleTree 12/29. The WeCare rate was $84 or $86. As of Jan 1, it was going up to $129. The receptionist said Dr B needed to renew the WeCare contract. I mentioned that to the nurse at his office who said she would talk to him. Imnot sure if the $129 is the new rate or not because the regular rate weekday for the room was $169. Let's hope not. That is a $90 increase if you stay two nights.

I completely agree with Dedee. You have a sick child. Your job is to find the most effective path of least resistance you can afford. You must preserve your energy for your child, yourself and your immediate family because you never know when this could get worse before better. Some parents have gone to speak with doctors armed with research, but honestly there are more failures than successes in that regard. Even if you are a medical or allied health professional like so many of us here, you would be surprised how quickly the professional courtesy dries up when you try and take a doc outside his or her comfort zone. There are members here who are physicians or have physicians in their own families who won't help or can't get them help. I love my husband dearly, but have cut him to the quick if I feel he is not rowing in the same direction as I am regarding my girls' treatment and they are healthy because of my no-nonsense, eyes on the prize attitude regarding this-he gets it now too I have found it beneficial to seek out doctors and friends (many who i 'met' here) who will completely support me in my mission to keep my girls healthy and I choose simply not to get into it with those who need convincing. I know some will disagree with me and say we have a duty to pave the way for others and for those who have the energy and fortitude, great! My goal is to convince others by way of my healthy, asymptomatic, happy, successful daughters as proof.

Hi Dedee, I've been reading this book by Anthony E Wolf on parenting teenagers....how they (often girls) long for opportunities to engage parents in "discussions" to get us off track and ultimately get what they want, whatever that may be. Sometimes families, particularly females, can get stuck in this dynamic and never grow out of this developmental stage with each other, even when they do so with the rest of the world. A couple of nuggets I took away from his book you may find interesting... 1) Confidence comes from the ability to make a decision and stick with it or change your mind when you choose because you have been provided with information you deem relevant and accurate. (It's ok to change your mind...for the right reason) 2) You do not change your mind because you have been bullied/badgered/judged or manipulated. 3) You disengage from the bullying/badgering/judging or manipulating by keeping it simple as soon as it starts. Repeat your direction or comment for simply what it was. And separate yourself if it persists beyond that. 4) You make effort to let go of the negative feelings you have with the attempt to be bullied/badgered/judged or manipulated so that you are less vulnerable to get sucked into the "discussions." Confidence does not come from perfection. We all make mistakes and tons of them. It comes from owning your decision making power. If you appreciate the conversation you have with Sister B, but Sister C derails it all, tell Sister B..."Do not discuss dd's treatment with Sister C." If Sister B responds..."you know she only loves you and dd....", do not get drawn into that discussion. Simply, firmly and pleasantly restate your directive one time..."do not discuss my dd's treatment with Sister C." Sister B will either keep her mouth shut or not. If not, and she comes back to you with snarkiness from Sister C, this is where you say (and w/o ANY retort to snarky comment)..."I asked you not to discuss my dd's treatment with Sister C. Don't do it." ....and move on. Not a major blow up, not a world war III fight. Confident decision making that can not be derailed to places you do not want to go and will never feel good about. You will feel your confidence come back and so will your family. Jill

YAY!!! A+ spelling How about I meet you at the Maple Glen Starbucks for a Peppermint Latte -skinny, of course

So much for my speech humor!!! Years ago I had a vanity plate that read RTICUL8 First one to guess gets a candy cane.....

Read the first sentence lisping on the "s" sounds. The point being, I may be exposed to more germs than others As feared, both girls now have with stomach bug....fingers crossed dh and I are spared the "Flu diet" And both have exhibited mild fevers, so I guess that is normal and normal is good even when your kids are miserable. I have no scientific reason to back this up, but I still think intestinal bugs are the exception to all this pandas mess. Has anyone's child been triggered by a 24 hr stomach virus?

How in the world did you or the doc know to look for strep with no symptoms???? And to look 17 times?????

You haven't had a fever in 10 years? Wow! Of course I do work in thchoolth with little kidth thpitting and drooling on me all day as they try and thay their ethethz. I'm really curious as to the WHY there may be an alternative fever response. And how do you fix it? My dd had her wham episode in March, 2007......she had perfect attendance that year. Kelly, It makes sense your boys are having normal fever responses because they are well. I guess I won't know about dd12 until I let her go from ivig long enough that she isn't enjoying donor immunity.

Nancy- Was that cocktail for elevated copper or something else?

My dd had one febrile seizure at 18 months. I think her normal fever response stopped young too, maybe 5? But what you describe about random fevers and vomit; that was her response to IVIG and not just immediately afterward, but periodically up until 12 weeks post her first IVIG. Now with IVIG, she has none of that. No fevers, no headaches, no vomiting even when we did no meds becuase her liver enzymes went crazy high. She has been doing really, really great and I think we are getting to the point where we will increase the time between IVIGs and then d/c and see if she holds. So, I'm asking myself....am I looking for a "normal" fever response to something? Her little sis started the stomach flu this afternoon and did get a mild fever. We could all get it...you know how that bug goes through a house (YUCK!), but for some reason, I think stomach bug is different....

http://online.wsj.com/article/SB10001424052970203518404577094604010074464.html#articleTabs%3Dcomments It is the 8th comment from the top. Back in the day, Dr T used to post his current theories, research and hypothesis on this board and we could ask questions or chime in with comments. I really learned a lot that way. He doesn't elaborate too much on this, so if anyone has had the privilege to hear his thoughts on the subject, please do share!

Many of us read Dr. Trifiletti's response to the WSJ article last week where he speculated our children's condition is an alternative fever response to infection. I was wondering what folks think about that? My dd used to get fevers when she was little, but rarely now. Something I thought about when reading this was how my dd would scratch bug bites until there was a sore, then scab. She would then pick off the scab and this nasty cycle continued until some ulcerated. Not to gag anyone, but her hands would be filthy from doing this and she had all these open wounds all over her. Never an "infection", never a fever. I've gotten a mild fever from a bad pimple before and this child never showed sign of infection with all this blood and dirt and nastiness going on for years. The only fever I can remember prior to ivig came with a UTI years ago. That's the last one I remember before IVIG. She's had several in the past two years in response to treatment though. Anyone have thoughts on this they'd be willing to share?

I'm sorry. That was my mistake. I did not mean the vaccine caused problems (I have no idea about that chicken/egg!) but that so many of our kids did not respond to it as with your son. I was wondering if the same "lack of response" would be more likely from the meningitis vaccine. My dd is 12 (yesterday ) and was up to date up until this past year and the only one that gives me any pause, and not immediately, is the meningitis one. Just curious.

Does anyone know about the meningitis vaccine? If so many of our kids had trouble with the strep pneumonaie vaccine, does that make them more likely to have trouble with the meningitis one? Why are they linked together?

Yes, hopefully parents will read Dr. Murphy's comments and realize how absurd the AMA stance really is. Also, if you look under "comments" the fifth comment down is by Dr. T. and worth reading. I also appreciate that the article didn't bother to quote or mention the infamous PANDAS naysayers Singer and Kurlan. This was interesting by Dr. T....... 3. Because of the plethora of associated triggers of completely different antigenic specificity producing an identical clinical syndrome, the notion that "anti-strep antibodies attack the brain" must be incorrect. Instead, a much better model is PANS is an "alternative fever response", seen in 1-2% of children to common infections most children are exposed to.

Amy, When my dd had trouble with that combo and her liver, she had nausea/stomach pains and headaches.......... and no behavioral changes. Have you changed the dosages of either abx since the ALT and AST were measured? Maybe you could have those checked again. Jill

Pardon the ignorant question here.......but how is the whole blood histamine measurement related to issues with the different histamine receptors? I'm guessing when ppl are reporting histamine is too high or low, that is for whole blood histamine, but this issue just seems much more complicated than that. Is there a way to measure the function of the individual receptors? Last one, I thought allergies were related to H1 issues not H3? If this has already been explained in another topic, can anyone recall the name of it and which board? searching "histamine" comes up with too many hits and H3 is too small.

I agree Peg. Docs are so quick to call a penicillin allergy. When my girl was a baby she happen to get diaper rash while on amox and the doc said allergic. She totally isn't allergic. I forgot about it and she was on amox several times before someone brought it up again and said ..,..huh....I guess she isn't.

Excuse me if this is an ignorant question. Can a child have a mutated gene if neither of their parents do? Can the gene mutate on its own or is it always inherited?

Here's another both sides of the chart question..... If supplements are going to diminish the undesirable traits, would they also diminish the artistic ability of dd11 or the innate ability to play piano by ear of dd8??? Is that a price of "normalcy?"

I just re-read the histadelia thread from about 5 weeks ago with the same histamine questions circling the bowl. Cab40 was confused about low basophils but severe peanut allergies. Walsh references food intolerance with OM rather than seasonal environmental allergies that went with UM. Histamine is found in mast cells and basophils. It doesn't seem to me like all "histamine" could be the same. There are four different histamine receptors H1, H2, H3, H4. H1 deals with the allergy functions, insect bites, motion sickness, hormones, sleep regulation. H3 deals with neurotransmitters histamine, serotonin, norepinephrine. Does anyone have a lab or panel of histamine measurement that they can share? Is it a single measurement or is it related to these different receptors? It seems like interventions documented are discussed in terms of their impact on these different histamine recptors. Like Benedryl deals with H1 so it relieves allergy symptoms and makes you sleepy. Walsh says OM's "can't tolerate SSRIs"......what does that mean? Don't many of our kids become activated by SSRIs? Their dose needs to be extremely low. Is that intolerance? I'm getting itchy just reading this stuff.

Laura, this came directly from that Walsh article/link above. I'm not sure about different types of histamine either. I do remember reading once about neuronal histamine, but I'll have to try and look it up again. Have you had your children's histamine levels tested? Was it one measurement? I don't even know what the name of that lab test is called. Do you know your kid's absolut basophil numbers? Does that jive with Walsh's article? Of course, I think it did say "elevated histamine +/- elevated absolut basophils"

Thank you!!! How adorable is Brody??? And Boogie???? (of course, you are lovely too!)