worrywort

Carolyn, That is good to hear. What supplements do you have your son taking? Also, was his talking an issue at school? I'm so afraid my son will be teased and singled out as weird.

Thanks for your feedback. It gives me more to research. It is interesting that my son hasn't lost any teeth yet. He's 6-1/2 years old and doesn't even seem to have any loose teeth either. Wonder if there is any correlation. We did have him swabbed for strep at the ER, but it came back negative. But since I heard that you can still have PANDAS with a negative swab, I asked my (wonderful) pediatrician about it, and she was willing to prescribe Amoxocillian for him if I was concerned. He has been taking 1,500 mg a day for the last 2 days. I started to see an improvement on day one, but then yesterday he started having more vocal tics again. She prescribed a 10 day treatment. I just want to rule out any infection. Unfortunately, we had to change health plans beause my husband started a new job. We are with Kaiser now, and our current pedi isn't a member. But she did refer me to another pedi she knows well and trusts at Kaiser. I have my fingers crossed he will be just as good. Thanks again for your comments. I hope to find some answers soon.

Hi, I am new to this forum. We haven't had an official diagnosis of TS for our six year old son yet. It's only been a month since symptoms began. But we are still looking for answers. Our story: five weeks ago my son had the flu (maybe H1N1) and was put on Tamiflu for five days. A week after being sick he caught a cold in class. He started with coughing and sniffing, that turned into more of a snorting. Around Christmas, he started coughing regularly, and not because he was sick. After that, it turned more into a snort with soft vocals, repeating the phrase "Is this OK" and "is that OK." He had a couple of days where it was non stop, like every few seconds. We were terrified. We took him to the ER and the on call Pediatric Neurologist gave a preliminary diagnosis of early Tourettes. He prescibed Clodomine (sp?) for the tics. We didn't fill the prescription. I was also surprised that this DR made a diagnosis without ever seeing my son, or talking to us. He only spoke on the phone with the attending DR in the ER. But he said that because my son was talking, it was Tourettes. A few days later we were able to see our regular pediatrician. She said it was too early to diagnose TS and that many of her patients my son's age have transitory tics that go away after time. She didn't seem to think being vocal was a determining factor, just yet. Also, she said that the drug Tamiflu has been linked to neuropychological side effects in children, and this may be related. We would have to wait and see. I am just so worried and confused. My son doesn't seem to have the classic early Tourette symptoms. Up until he was sick, we never saw any motor tics or unusual behavior. He did have a couple of weeks where he opened his jaw every now and then. But he told me it was because it hurt. The dentist looked at this mouth and said he had a couple of molars coming in and that could cause some discomfort. The only other thing that he does have is sensitivity to tags on clothing and sometimes he says his socks feel wrinkled. But other than that, there is no OCD or anxeity. I would say he tends to be an active boy, but not ADHD. Does anyone have a similar story? I'm trying to figure out if this is related to the Tamiflu, or if it's PANDAS, or early TS. He mostly only whispers and talks, sometimes after snorting. Lately his phrases have been complex, like "And this OK, hos, Shos...and is that OK, shos" He also has been repeating a sound "hos" over and over. It is so scary. There have been no head jerking, eye blinking, or body movements. Once in awhile he will stand straight, like being at attention. But it doesn't happen much. I should also note that I have eliminated sugar, most dairy, no food dyes or corn syrup. He takes Vitamin C, D, Omega 3, and Greenies. He hates veggies and doesn't even like fruit. The diet thing has been really hard. I also have been giving him Epsom salt baths every other night. They do seem to help control the tics a bit. Thanks.