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My 15 year old has had night time enuresis all of his life. About a year ago he finally got a handle on it and only had accidents at night maybe once a month. This week suddenly it has returned to nightly. Has anyone had this happen to their child. Is this a sign of a PANDAS episode. He is not showing his normal other signs of increased tics, although the older he gets the less we see the tics and OCD.

I have two kids with PANDAS (my diagnosis). They are 19 and 14. They have been seeing a Neuro for tics, ADD, OCD since they were about 5. I have known for many years that strep was the culprit but every time I mentioned this to Neuro they always dismissed it. I am getting ready to take 14yr back to neuro for check up and want to ask nicely (demand) alternate treatment. Currently he is on Zoloft and Strattera and has been for years. My 19 year old had been on same treatment for many years and when she turned 18 she decided she was not taking meds anymore. I noticed no difference when she was on or off meds. The only thing that makes a difference in their severity of symptoms is illnesses especially strep. As they have gotten older their symptoms have gotten milder, but they also have not contracted or been exposed to strep as much. In December my sons symptoms were worse, total change in mood (even crying about things) tics more severe, etc. I started giving him 800 mg ibuprofen 3x day and he improved quickly. So her is my question, what would you recommend that I ask (tell) the neuro to prescribe? I do know I want to wean him off of his zoloft and stratterra. He is 5'3" and 110 lbs. Any advice would be great. We live in SE Virginia so we are to far from Dr. Latimer but I would prefer to have the local Neuros begin treating PANDAS and want to insist they try what I want (wish me luck). Thanks Melissa

Can you give me the name of the Neurologist? I have two kids with a long history of TS symptoms that need a PET scan. Thankd

I am interested in trying omegas and probiotics with my PANDAS kids. Can you please tell me amounts, types, etc you have tried with results. They are 19 YO weighs 130lbs and 14 YO 110 llbs. I am also considering them for my little kids w/o pandas ages 4YO 30lbs and 19 months 26lbs. Any opinions or experiences would be appreciated. Thanks Melissa

I first heard of PANDAS about ten years ago on the internet. Unfortunately out docs would not pursue it even though I sent them articles.

Does anyone have experience or advice with older teenagers? I have two teens with PANDAS. My daughter is 19 and my son is 14. They both have had tics, OCD, ADD etc. They both began seeing a Neurologist at an early age about 4 or 5. After displaying tics and behavior issues at between 2 and 3 years old. I always knew it was strep related just because of the close relation of exposure to strep and their symptoms. The docs always told me PANDAs was controversial and they never wanted to take the issue any further. Both kids have been on SSRI,s and Strattera for years. Now that they are older their symptoms are lesser degree but they still have some symptoms. They both still wax and wane with all symptoms but dont seem to get strep very often,(that I am aware of). I am just realizing they definitely have PANDAS, the more I read the more I say " my kids fit this exactly, they have had episodes of all of the symptoms". I just received copies of their medical records and after going through and highlighting everything related to PANDAS, I was shocked. There were even symptoms in the records I had forgotten they had. We have been dealing with this for 17 years. Does anyone have any advice on where to start for medical treatment? Does anyone have experience with starting treatment at such a late age. The 19 year old is of course finished growing. The 14 year old is just starting puberty he is a late bloomer. Thank you for any advice. We live in SouthEastern Virginia I am going to call Dr. Beth Latimers office on Monday to see if she will see the kids Melissa

My 14 year old son with PANDAS has the worst handwriting. If someone had to guess they would probably say that a first grader with bad handwriting had written it. It is not big letters just almost illegible. The handwriting does not change with his symptoms it is just always bad. Has anyone else seen this? Maybe he just naturally has horrible penmanship? I am new here and will be writing an introduction (when I have a moment). I have read a lot of the post and am so relieved to have found this site. Thank to all who are here! Thanks Melissa