harmony

Is anyone completely p%^^ed off? I did not think that I would be THIS mad! And why is the woman not choosing good questions? I have submitted 5 good ones- lets challenge him!!!

My side=Polish (my mom) Hungarian (my dad) My husband=Italian (his mom) ? (his dad)

Harmony: How do you test for a strep infection in the sinuses? I really want to know because I think that may have happened to my ds9 last month; when our doctor gave him antibiotic for strep "smell" and negative throat culture. You could smell the strep on him, he continually has sinus snorting and such, hard to sleep ect. But last month was worse and the smell. The smell went away after antibiotics. They (ENT) swabbed his nose. Yes his breath smelled like rotten meat- i don't know if it was strep in particular that i smelled or just the "general infection". His immunologist, and all the ER staff noticed then mentioned his smell as well.

I just tried to fill out the application for March. It asked for the name of the person or organization who would be receiving grant. Should I put "University of Oklahoma Biomedical Research Center- Madeline Cunningham". I also got stuck on some questions like: How long will your project take to complete? Less than 1 month Less than 3 months Less than 6 months 6 - 12 months Can you start your project at any time? Yes, it's ready to go. No, it needs to start at a specific time. (should I just put Yes- since it has already started?) It also wants an image to represent the cause- any suggestions? Would I need to get permission from Cunningham before sending this in? Boy- this is a lot more complicated than i thought.

I am totally with you on your opinion of Beth Maloney's idea of titers. But I got my cards in the mail and plan on sending some out today! My husband and I are attending the autism one conference in May- I am really curious to hear what everyone has to say about the titers. I can only afford to attend 1 day of conference- I plan on seeing: 1:45-2:45 pm Dr. Madeleine Cunningham and Dr. Susan Swedo: Autoimmunity and Behavior: Sydenham Chorea, PANDAS and Related Disorders 3:00-4:00 pm Dr. Rosario Trifiletti and Lynn Johnson 4:00-5:00 pm Dr. M. Elizabeth Latimer and Laura Matheos, MBA: PANDAS - A Clinical View and Treatment Options

I would love to do this- and I have time tomorrow. Just tell me what I need to do!

Thanks for posting this. I live in the Atlanta area and am always looking for an experienced dr. I just wish he took insurance

Thank you so much for all your replies!

I was going to tune in of curiosity. Dear Friends, Due to the pending snow storm in New Jersey we unfortunately must postpone the webinar scheduled for 7:30pm on 02/10/10 to a date yet to be determined. When we have rescheduled this webinar we will email you an invitation with the date and time. Kelley L. Teabo, Project Coordinator NJ Center for Tourette Syndrome & Associated Disorders, Inc. 50 Division Street Suite 205 Somerville NJ 08876 T: 908 575 7350 F: 908 575 8699 cid:73A6F9D6-6B13-497D-ABCB-7D47A9EA2327@local www.njcts.org

Is it necessary to test for titers after a positive culture? I have heard so many people say different things. My son has not had his titers checked in 4 years-both tests (ASO and AntiDNAse) came back negative even after a positive culture- but the blood was taken within days of the positive culture. He is recovering from a very bad strep infection in his sinuses right now- he is clearly not back 100% (neurologically) yet- should I do the blood work? If so, what would be the point?

I don't know how to start a poll- but my son just had one 3 weeks ago- still to early to tell.

I appreciate the offer but we are only going to attend the conference on Friday.

Or white! Pure light, light, light! O.K. What about White, yellow and green? Green background with white and yellow lettering?

I just made reservations too! We should try to get everyone together!

Just the other day my daughter, age 11, said, "it's like my brother is possessed- like in the scary movies. When is he going to get better and STAY better?" She knows that this is a part of PANDAS- but she still gets upset sometimes when she sees her almost 7 year old brother go through this. It has been a LONG 4 years. I just showed her your post and she couldn't believe it, "OMG they are talking about my brother!!!!!" I do have a question: Do the titers really matter- when you already have a positive culture- should you still test titers? (he just had 2 sinus surgeries in the past 3 weeks to rid heavy growth of strep A in nose- he became SOOO sick he ended up in ER and then emergency surgery)