tiaratoledo

Hi Atex, I’m facing a similar situation with my almost 5yo son. We are also at the beginning of the journey, trying to understand more about this condition, triggers and natural treatments. We had a neurologist appointment today and it was disappointing to say the least. He basically said there is nothing to do unless I want to put him on meds. This forum has been very important for me as well. I hope the 6 months protocol can help your daughter and that soon your new update will be that she is totally tic free 🙌🏻 Tiara

Thank you so much for replying Sheila and Swetha! I’m feeling so overwhelmed those days that just by the fact that someone has replied makes me feel less lonely in this path. I am not normally an emotional person, but this tic issue has got me like nothing before. Specially during the evenings when the tics get worse, I find myself avoiding to look at him and wanting him to desperately go to bed so it will finally stop. I feel guilty and hopeless all together. Sheila, we do have insurance. I took him to the neurologist and the result was the same other moms have anticipated. The doctor basically said it was a tic disorder and that there was not much to do other than medication. I was left with nothing. I would love to hear your suggestions for professionals that use an integrative approach. By the way I bought your book, it arrives today. We need help and a starting point. I live in Miami, Florida, but we could go anywhere really. I truly appreciate your offering to connect with us. What is the best way for you? Over the phone? Swetha, the relations you made between chlorine and glutathione is very interesting. All the recommendations are very useful. I will start them today. One thing that I would like to understand more is about the frequency of the tics and if they change. My main concern is the current severity of my son’s tics, specially because it’s very noticeable and he is already self aware at age 4yo. Yesterday I took him to a playground and he said he did not want to go because other kids would “see him”. It destroyed me from the inside to see him ashamed of himself at 4yo. How it was for your son? Is he doing better with the tics now? Again, thank you both!!

Has anyone had a son that started very early with complex non stop severe tics? I’m very worried about how early he is presenting symptoms and that those symptoms are so severe at his age. I guess I’m looking for someone else who had a similar experience that I can relate. I’m looking for reassurance and so hope. My son is 4yo and has started ticking when he was 3yo. It started very mild with blinking that turned into excessive blinking for a few weeks. Then it disappeared. At the time the pediatrician said it was a natural development tic that would most likely go away as he grows. About 6 months later, we went on a family trip where he spent most days in the pool. The day we returned the blinking returned, more severe. Now I know it was most likely triggered by chlorine. This time the blinking took about a month to go away, and disappeared completely. After three months, a new tic appeared. This time much more severe. He started eye rolling to the left side in a movement with eyes, shoulders and head all together. It took a few days then got better. Out of the blue, this week he is in a major tic crisis. The eye rolling with shoulders intensified to a NON STOP tic, that led to other weird movements with his head and shoulders. Sometimes he rotates his head 360. it’s very scary to watch. He really does not stop. It’s not that he does that every few seconds. He is actually doing the movement repeatedly. I would greatly appreciate the sharing of relatable experiences. I’m so worried. Thank you, Tiara