Hi Eve,
Cant thank you enough for the valuable information you have provided here. Really sorry to know that your son had to go through that phase.
Below are some more questions in red from my side and am sorry the list is long.
1. Made an appointment with a neurologist to get a Dx. We did do medications through 7th/8th grade.
Her tics are looking mild now and the neurologist said we can think about medication if it gets intense. Do you think adding mild medication now would help her as a starting point?
2. We had a private OT evaluation completed and he received support once a week to help with sensory processing, etc. I thought this was really invaluable, and it taught me things to do for him at home;
Neurologist suggested us to start the below.
1) CBT - Cognitive behaviour therapy
She suggested CBT as my kid has some anxiety issues (ex : she's scared & sensitive to sounds ). Neurologist wants her to be evaluated for ADHD/OCD
Is OT the same as CBT?
2) CBIT - Cognitive behaviour intervention therapy
(therapists said she's too young to start this and may we can look into this when she's 8-9)
3. Neurofeedback;
4. Chiropractor;
5. Went to a specialized MD/Homepathic Dr who conducted very intensive blood work to see what food Harrison was sensitive to, what vitamins he needed, etc. This was very valuable. Magnesium still works to regulate his body, especially Epsom salt baths;
Can you guide us on whom to contact for testing her deficiencies or sensitivities? Should it be a homeopathic dr or any specialized md? Will the person from functional medicine be right for this? https://www.ifm.org/functional-medicine/
Havent tried using mg yet? Can we try mg + epsom salt baths in the same day as they're both related to mg?
6. No gluten - huge trigger. Not so much anymore.
I keep hearing this a lot from others. Did you find this through celiac and gluten sensitivity?
7. Knew that they would be worse when he was exposed to chemicals (chlorine), when he was getting sick, if he was anxious or excited, traveling, etc.
From what I can see, her tics would get worse when she meets her friends or plays at park. She get too excited, not sure if this is because of ADHD
8. I'd also look into ECE (Early Childhood Education) in your state to see if your daughter will need some support at school. We had a 504 for Harrison in high school (he is not using it right now in college), to make sure teachers understood what TS and what it can look like in the classroom.
She will be starting her kindergarten from tomorrow and will see how she adjusts to the new environment
9. Continue to find support with other parents and don't give up; keep researching and educating yourself.
Thanks again for all your help.