britneymag

EA Mom, I did email Dr Cunningham and I just heard back from her. She said that she would be interested in having DD in the study but wanted some history on both of us. I don't have my DD's history as far as being tested for strep and mine is written in such bad handwriting that I'm not sure that they could read it. Did you have to send in history's to be included? Thank you so much for the name and number. Houston is only 3 hours away and very doable if it is going to help my DD. Melanie

Thanks for the comments. I have sent off for the tubes for Dr. Cunningham's study. I am a little worried that it won't show anything since she is on antibiotics. She is still ticcing away even after being on Amox for two weeks so I am going to call her Dr. and see about something stronger. I am in the Austin Texas area if anyone knows of a good dr. around here. We saw Dr. Kendal Stewart for her sensory issues which he helped with using antivirals, but we could never get rid of the tics. When I asked him about PANDAS last year not much info was out there so he didn't seem like he wanted to pursue it. Melanie

She has not been diagnosed , but I do believe that she has it. I have found a Dr. who is at least willing to listen to me and read the research that I bring him. I think I do need to find a Dr. who already knows about this because my Dr. is only going to go so far. She is on Antibiotics right now for an infection. He told me he would keep her on it for 14 days and then put her on a smaller dose for about 4 weeks and we will see what happens. I don't think that I could get him to prescribe steroids or anything else right now. She is on day nine of amoxicillin and tics were good for five days and then started getting worse again. Is this normal? When should the tics start to subside? Melanie

I had Strep 3-4 times a year as a child and ended up with Rheumatic fever when I was 18. I was put on antibiotics for 3 years and now I am 36 and have never had another strep infection. I also had tics and ocd (undiagnosed) throughout my childhood. I am thinking that I very definitely could have had PANDAS. I am now reading up on and trying to get treatment for my daughter who HAS been diagnosed with tourette's and OCD. She tends to get strep a lot also. I wonder if she was more apt to get it because of me? Also, if antibiotics helped me will they be more likely to help her? This is the argument that I am giving to the Dr. that we are seeing anyway. Melanie