JulesLou

Thank you again, my son has vocal tics which are noticeable but bearable but last Sunday he went swimming for the first time in ages and Monday he has started two different very loud noises so I am convinced the chlorine in the pool has started these. I am hoping that they will settle down again soon but will now look into buying L carnitine. I am also thinking about eliminating dairy to see if this helps as I have read lots of stories on this.

Thank you for your reply, when you used the L carnitine did the vocal tics go altogether or just improve a little? Also when you stopped using it did the vocal tics become worse again?

Thank you for your reply, my son doesn’t like the baths as obviously he is lying in just warm water (no bubbles) so was just wondering. Also you mentioned previously l carntinte worked well for your sons vocal tics, I have looked this up and says it is for weight loss so what actually is it and how does it help? Sorry so many questions but am desperate for something that will help!

I have been giving my son son Epsom salt baths every other night for a long time. Just wondering if people add something to make bubbles and a bit more like a bath? My son uses a Sanex shower gel that has no perfumes and have thought of adding this but will this rule out the salts effects? Just trying to make the bath a bit of a nicer experience for him!

Thank you, for years I have been studying every body else’s stories which are obviously all different and a lot seem to be in America where I am in the UK. The Dr has been of no help at all and it seems unless it is affecting his mental health and suicidal there is no help for us. which l carnitine did you use and how long did it take to see improvement? I really do feel so helpless that he has to live with this and I have not found anything that will help him.

This is my first time posting, my son started nodding his head at school around the age of five. This turned into eye rolls, sniffing, facial movements, lip pursing, puffing of cheeks amongst other things. Around the age of seven he started with small noises which overtime have gotten worse until last year aged eleven they exploded into very loud noises, He is now twelve and the head nods are rare, nowhere near as bad as they were, the facial tics come and go but the main thing now is the constant and loud noises. They do change overtime but cannot pinpoint what causes this. He already has Epsom salt baths every other night, high levels of vitamin c with magnesium, haliborange omega 3, Pro ven probiotics and well kid calcium liquid. I watch his diet and limit sugar, preservatives, colours and artificial flavourings. We have gone gluten free, tried homeopathy and hypnosis but noting has helped. Does anybody have any suggestions, has anybodys child grown out of this and if so around what age should we see improvement? would appreciate any help