Hi Everyone!
My son is 10 and we've been dealing with the ups and downs of PANDAS symptoms since he was 4 1/2 (after having strep throat). We've been all over the board trying to figure out what could explain the repeated sudden onset and gradual disappearance of tics (especially in front of the TV), personality changes, foggy brain, OCD behavior, etc. Illnesses always make it worse and the reduction in symptoms is always gradual. We could not find anyone that would put a name on this until we came across PANDAS about a year ago. We had been working with a Naturopath for about 5 years that helped us eliminate systemic candida and tried to eliminate the tics, but he did not feel our PANDAS test from NeuroScience supported our PANDAS diagnosis.
In March, we had our son tested for food allergies and found he is allergic to wheat, gluten and dairy. We already had him off most dairy. We removed these items from his diet and in a few days he was symptom free. We thought we had finally found the last piece of the puzzle. About 4 weeks later, he got strep throat and the tics are worse than they have been in years. He is not sleeping well again and I see OCD behaviors. I am at my wits end!
While he does not seem sick, I wonder if he could still have strep without the symptoms after reading many of the posts on this site. Does anyone have a thought on this? Is there a test I can ask our regular pediatrician to do to find out? If the still has strep but no symptoms, maybe antibiotics could help. Any thoughts?
We are giving him magnesium orotate daily, B12 every 3 days and probiotics. I have also started throwing in vitamin c.
Lastly, I have been trying to find a doctor in our area that at least recognizes PANDAS as a real diagnosis, but I can't find anyone. Does anyone know any names or places I can use to find a doctor that treats PANDAS?
Thanks for reading!
