TracyRee

Thanks, I'm going to try and get one of the others though. I'm driving myself crazy worrying about all of this, being 6 months pregnant isn't helping. I would just feel better knowing he was already on the abx known to work better. Anyone know if it's a problem to switch abx midstream like that though? Wonder what the doc will say about that....

I can tell he feels better, he's not as emotional and playing independently for the first time in a long while. The frequent urination may have gotten a tiny bit better, but not drastically so. I'm going to call in the morning and ask about the Augmentin or a cephalosporin. I think my doc will be fine with it, I just want to be careful about how I present it so as not to come off like I'm questioning his ability. I think as long as I say that I've been researching PANDAS like a fiend and have heard that PANDAS kids respond better to one of the other abx, he'll be fine. He openly admittted he has no experience in this but was still very receptive to the diagnosis, so I don't think he's the type that will get his ego bruised too easily.

Ugh, I was afraid penicillin wasn't going to be the best choice, wish I'd have known that when prescribed. Our docotr is so receptive to this PANDAS thing, but I don't want to step on his toes and question every single thing he does, ya know? I was the one that suggested PANDAS to begin with, faxing some info and requesting a strep test. How can I call him up and tell him I'd like a different prescription without stepping on his toes too much?

So we are in the very very beginning stages of researching PANDAS. About 2 weeks ago my 4.5 year old son had a fever and sore throat, saw the doctor but no throat culture at that time. The next day he started urinating obsessively. (sometimes once a minute) We tested his urine for infection, blood for diabetes, had an ultrasound and considered Pollkiuria. The degree of frequency concerened me enough to research a bit and I came across some PANDAS info online. Knowing he had been sick right when the frequent urination started and having some past issues that fit the description, I talked to his doctor and took him in for a strep test. We were both surprised when the rapid test came back positive, it had been almost 3 weeks since the fever and he's showing no signs of strep at all. The doc prescribed penicillin, which he's been on for 2 days now. The prescription is for 10 days. I'm thinking I'll need to have him tested for strep again to be sure the penicillin took care of it, when do I need to do that? What's the enxt step if he's positive again? Will the rapid test be enough? Also, about how long will it take to see some behavioral changes? I know that the problem isn't the strp bacteria, but the antibodies, so how long before the antibodies reduce enough to give him some relief? Thank you in advance, I'm a bit overwhelmed by all the info and trying to figure out where he fits into all of this.