treysmom

Hi everyone, I am brand new to this forum. Wow, I am not alone! I thought I would share my son Trey's story, in a nutshell. He is 8 and we live in Arizona. At the age of 5 he developed, what the doctors finally called, Cyclic Vomiting Syndrome-CVS. Basically, he had what presented itself as a 24-hour stomach flu, every 3 weeks; fever, vomiting every 30 minutes for about 8 hours. For a while, we just thought he kept getting the flu. He was not ever in daycare, and now in Kindergarten, he was bound to catch a bunch of things. Well, finally, I spoke to the doctor about the frequency and started keeping a record. Sure enough, this is not normal, saw a Ped GI doc, did upper GI test, could not find anything, so it has the name of CVS. (which by the way, has its own forum, and found a mother who directed me here). Eye ticking began this year. Thought it was allergies, as he does suffer with that. First grade, CVS a bit farther and fewer between, eye ticking comes and goes. 2nd grade, CVS even farther and fewer between, but tics begin in neck, shoulder. His tics come and go. Ped Doc sent us to neurologist, who says "Yes, he has tics, not tourrettes, quite commom, nothing to do about it". Through last year (2nd grade) they did come and go thru various parts of his body. 3rd grade, this year: Began major head jerking tic about 3 months ago. This is the first time for him that people have noticed it. Went from head to stomach, to legs, head bob, and so on. It has not gone away this time, only traveling throughout his body. Really upsetting to him and of course to us as parents. Saw a naturopathic doctor 2 weeks ago. I have taken him off of dyes/addititives/preservatives; well, I am working on it. I have always been a bit nutso over this anyways, so it is not a drastic change. This doc wants to do a certain blood test to check food/ metal levels in his body. Not sure if I should do it or not, as it costs $600. Besides the tics, Trey is actually pretty good. A bid OCD, but does well in school, lots of friends, plays sports. I also started him on fish/omega 3 oils and probiotics. Should I try the b vit/magnesium/NAC on my own? Any thoughts? Thank you for your time and thoughts and care in writing your stories and treatments. What a blessing!! Dana