Jump to content
ACN Latitudes Forums

jeremyssmith

Members
  • Content Count

    6
  • Joined

  • Last visited

Everything posted by jeremyssmith

  1. For a new onset of symptoms (going on 5 weeks now), what is the consensus on the cunningham panel? Pediatrician is not opposed to ordering it- but as with anything is skeptical if it has any value this early on. Initial Strep ASO was only slightly eleveated, and response to Augmetin thus far (9days in) has had minimal effects. My thought is that we're only a few weeks in, and we have very little invested time/money/medications in treatment thus far- so if CP can confirm PANS/PANDAS, then we at least know which way to go with treatment. From what I've heard though- is the CP doesn't
  2. @lordchallen thank you- please don’t read anything into the fact that I don’t currently share the anti-vax opinion. It’s my own ignorance on the topic that drives my opinion. I am always open to new thoughts, and especially in uncharted areas like this. I appreciate your candid response - as I actively consider all possibilities. My stance on vaccinations at this point is not important because that’s in the past- my focus now is on the future and how to deal with that- and your advice has been very helpful.
  3. @maryangelaThank you for your insight.. I totally understand your interpretation of the anti-vax position with doctors. My (uneduated) view of it is that the potential *good* part of not vaxinating was tainted by the high profile case that was proven to be false. With everything there has to be some middle ground. Specifically, for my son- if the prenatal drug exposure opened the BBB.. then maybe that would be a case for CAREFUL vaccinations- because the "normal" biological response may not be strong enough in his case- which then brings into light many more questions... i.e. We are livin
  4. @bws1565You bring an interesting perspective... not one I currently share- and don't really want to open up the passionate discussion of vacc/anti vacc on this forum, but I do think the points you present are worth evaluating. I *used* to be hard over on trusting the doctors to know what they are talking about, to now palcing more importance on educating yourself and being proactive in every decision- and vaccination is an important part of that discussion. Thank you for sharing.
  5. @lordchallen- Thank you for the reply. Here's an update. We did get Augmentin prescribed and 36hrs later I felt like I was exorcising a demon. The tics, the coprolalia was so severe he couldn't even sit still. I gave him melatonin and let him sleep it off. The next day was much better, but not back to pre-symptomatic "normal". We're now 96hrs since starting the abx, and he's been about the same since the morning after the huge reaction. I've researched herxheimer reaction- and that's about the only thing I think explains the drastic worsening of symptoms- and there are many articles
  6. I have a 14yo (prepubescent) son who overnight developed severe tics and Coprolalia along with other symptoms aligned with PANDAS/PANS. He has been on ADHD meds for over 10 years for Sensory Processing disorder (SPD)- so the it's hard to say exactly when the symptoms truly started. He had a history of severe ear infections, when much younger and Rheumatic fever at age 6. His initial diagnosis following the rapid onset of tics was maybe Tourettes, so I started reading everything I could about Tourettes and kept coming back to PANDAS because my wife had strep-like symptoms the day prior to
×
×
  • Create New...