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Everything posted by IcedCoffeeMama

  1. Thank you for responding! Wow. Was there a specific panel you asked to be tested for or did your doctor have an inkling? We had our first appointment and our doctor is just running the preliminary stuff. We're feeling grateful that his symptoms have largely subsided after a very difficult period, but it seems that the treatment approach for us at this stage is wait and see what happens and then attack it aggressively to avoid antibiotic resistance.
  2. Thank you for responding! This may seem like a very basic question but are there certain things we should be asking to be tested for? Just got back initial bloodwork. Elevated titers for Strep and DNAse. He had basic blood work done within about a week and his strep titers went up about 100 points. Is that weird or not? His last positive strep test was 2 months ago. He's been swabbed probably 3 or 4 times since then. No exposure to Mycoplasma or Epstein Barr. Low Vitamin D. The doctor forgot to order the blood tested for Lyme, so we're going to do that. Should I ask that he's teste
  3. Hello, This is my first post, but I have been lurking here since April when we started putting together that our 7 year old ds' symptoms was more than just misbehavior. Working backwards, I believe that the inciting event was over a year ago about a month before he turned 6. He was diagnosed with both strep and impetigo, had a horrible rash and was put on amoxicilan and mupirocin. The next day his behavior shifted drastically. He was not himself. I scolded him for being mean to his younger sibling and he cut off a chunk of his hair. He was in a ridiculous state after, laughing uncontrolla
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