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fiddlegrl

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  1. Thank you both so much for your suggestions and encouragement. MomWithOCDSon: Thank you for the suggestions regarding methylation and genetic markers. I will look into these things. I’ve been working with a doctor that I think would be considered a functional medicine doctor. I’ve been thinking about possibly considering working with a naturopath as well. I have had different tests done for porphyria, although I’m not sure if the tests were performed at the appropriate times according to my symptoms. My urinary porphyrin levels have been normal. I’m not
  2. Hi, I am new to this forum. I thought I would introduce myself, and also wondered if anyone might have suggestions about some unexplained symptoms that I experience. I am 23 years old. I was diagnosed with PANS a year ago by a neurologist who diagnosed me based on my symptoms, and also through my Cunningham Panel results. I was treated with one course of IVIG over a 3-month period, which didn’t have any effect on my symptoms. I’ve had many tests done to evaluate for infections and other conditions, including brain MRIs, lumbar puncture, many blood and urine tests, etc. I have
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