determinedmom

Can anyone help me with some questions about PANDAS? After a recent strep throat infection, my daughter began to show signs of OCD. Excessive handwashing, won't touch doorknobs, clothes that were worn the day before, or lightswitches, worry about dying, worry worry worry all day everyday about everything! After some of my own research, I diagnosed her with PANDAS! I called my pediatrician for a consultation and he wouldn't meet with my husband and I, saying that was "out of his league" He referred us to a psychologist. The psychologist agreed that our daughter has PANDAS. We asked the psychologist the following questions and he said that those were medical questions that we should ask our pediatrician about!! Here are my questions: Will her brain ever fully recover from the damage it suffered when the strep infection occured? Do we need to send a note home to parents at school letting them know that a child in the class has PANDAS and encouraging them to keep their children at home if they complain with a sore throat and also to report to the teacher if their child has been diagnosed with strep throat? If she gets strep throat again, will it add to the damage, making her symptoms worse each time she gets strep? We know this is a pediatric disorder, so when will she "outgrow" this disorder so we can stop worrying about her getting strep again? What are the natural vitamins/suppliments recommended for children with PANDA'S? Any other information is really appreciated. Thank you so much

Can anyone help me with some questions about PANDAS? After a recent strep throat infection, my daughter began to show signs of OCD. Excessive handwashing, won't touch doorknobs, clothes that were worn the day before, or lightswitches, worry about dying, worry worry worry all day everyday about everything! After some of my own research, I diagnosed her with PANDAS! I called my pediatrician for a consultation and he wouldn't meet with my husband and I, saying that was "out of his league" He referred us to a psychologist. The psychologist agreed that our daughter has PANDAS. We asked the psychologist the following questions and he said that those were medical questions that we should ask our pediatrician about!! Here are my questions: Will her brain ever fully recover from the damage it suffered when the strep infection occured? Do we need to send a note home to parents at school letting them know that a child in the class has PANDAS and encouraging them to keep their children at home if they complain with a sore throat and also to report to the teacher if their child has been diagnosed with strep throat? If she gets strep throat again, will it add to the damage, making her symptoms worse each time she gets strep? We know this is a pediatric disorder, so when will she "outgrow" this disorder so we can stop worrying about her getting strep again? What are the natural vitamins/suppliments recommended for children with PANDA'S? Any other information is really appreciated. Thank you so much