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Dr_Rosario_Trifiletti

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Everything posted by Dr_Rosario_Trifiletti

  1. A parent recently told me that she didn't like the term PANDAS because it conjured up gentle, adorable, rarely seen bears. PANDAS is not gentle and sweet, nor is it rare. We need something NASTY and COMMON So I propose: Streptococcal Immunopathy with Neuropsychiatric Signs i.e. SINS does anybody else have any suggestions - maybe wait for some holiday punch to kick in .... Dr. T
  2. I feel I have to clear the air a bit - 1. Since I "advertised" here in early November, and especially since the Today Show, I have been BUSY. but not overwhelmed. I count 150 new contacts in the past month. Almost all have or may have PANDAS. To put this in perspective, this is about as many as I would normally encounter in about 5 years time. 2. Those that have been nice enough to visit me know that, at the moment, I work alone. I am the secretary, I make the charts, do the billing, and yes I clean the bathrooms. This doesn't bother me at all, but does take away from the time required to be a doctor. 3. It is true that my voice mail is frequently full (do you wonder why?). However, I spent the afternoon yesterday clearing out 75% of my messages and personally responding to most. I promise to get to everybody. 4. I do try to make everything as easy as possible for the patient and parents - I see one patient at a time, so you will not have to have your child exposed to more strep in a waiting room, have a little playroom in which to examine younger children naturally. I try to minimize paperwork and spend at least an hour and a half with parents. I try to explain all the options. I've even picked up patients at the local train station and then back after the consult. I have a scheduled opened to see patients M-F 8am-9pm have Sat PM and Sunday hours. How much more accommodating can you be? ... 5. I have been accepting insurance. As you might expect, I am very behind on billing. There are people I have seen for less than you would pay for a pizza dinner with your child and I have tried to provide the same care to everyone. I'm going to try to keep this going as long as I can, but may have to modify things to stay afloat. I will be updating my website soon to clarify matters. 6. I now do phone consults. My philosophy is a phone consult should be just like a face-to-face with the only exception is that I can't examine your child. Once we do a consult, I am your doctor with respect to PANDAS management. I have to charge up-front for this, because there is almost always no insurance coverage for this.
  3. I just wanted to let the community know that I am scheduled to appear tomorrow 12/8 on TV as follows: 1. On the NBC "Today Show" at approximately 8:09-8:13 AM EST with Lauren and her mom. I am supposed to be interviewed by Dr. Nancy Snyderman and Meredith Viera. I've been told I have 30-60 sec to explain PANDAS and its treatment .... 2. On the "Dr. Nancy" show on MSNBC at approximately 12:30pm EST. This is supposed to be a longer segment. I'm going to try my best to paint a "fair and balanced" picture of things. What "textbook PANDAS" is, possible variants, things parents should look for, and areas for research. The idea is to disseminate good information and that many valid treatment options are possible depending on many factors. Please let me know how you think things went, what we can do in the future. Dr. T
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