Jump to content
ACN Latitudes Forums

andyjeanne

Members
  • Posts

    1
  • Joined

  • Last visited

Everything posted by andyjeanne

  1. PANDAS can ABSOLUTELY happen without tics (and my son also only displays OCD). Also, the food avoidance is one of the very common types of OCD associated with PANDAS and one of the more dangerous ones. Everything you describe sounds exactly like what we experienced and given the positive strep test I'd be amazed if it wasn't PANDAS. Share the diagnostic criteria with your pediatrician and point out that it must involved OCD and/or tics, not necessarily both. https://www.pandasppn.org/ppn-pandas-diagnostic-guidelines/ Also here's a great video describing diagnostic criteria and a lot more about PANDAS from the standards of care summit: https://www.facebook.com/PAScares/videos/969080689888994/ You also might direct your ped to the treatment guidelines published this year: http://www.liebertpub.com/global/pressrelease/revised-treatment-guidelines-released-for-pediatric-acute-onset-neuropsychiatric-syndrome-pans-pandas/2223/ a lot of these kids need a longer/different type of antibiotic to clear the initial infection completely, even if they don't do long term antibiotics. Also, symptoms may come down slowly even after the infection is totally cleared which makes it hard to know if you need to do more. Glad you're getting to a PANDAS doc soon. In the meantime you might also see if any of this improves with ibuprofen. NSAIDS are helpful for some of these kids since the root cause is inflammation.
×
×
  • Create New...