rfolckemer

Hello, I'm new to this site... My son has been diagnosed with TS since he was 6 yrs. old. He is now 8yrs. In Fort Benning, GA he received pediatric neurological care (civilian doctor). My sons symptoms were all sorts of tics, facial, jerking and twitching of hands and fingers, legs, and also verbal. At first he was diagnosed with a mild case of TS and OCD. My husband and I excepted his tics as just apart of him, however he was unable to function normally in a structured environment- school. We made the choice of starting medication to lessen his tics so he could be able to get an education. Unfortunately, those meds only worked for a couple of weeks at a time, or not at all. Along with all of that, we had allergy tests done on our own because the neurologist did not believe allergies had any connection to TS. We discovered he was allergic to eggs, and fish. Taking those out of his diet made no difference. Our son has behavior developed severe behavioral problems and is becoming socially unacceptable. Over the last two years he has been on medications that have never worked for him, and honestly he has became aggressive, irratable, emotionally distressed, and almost psychotic at times. I feel we are losing our son, and the medication is a big part of it. We have just recently moved to Fort Drum, NY- our first visit with the new neurologist I explained all of this to him. Once again, another doctor telling me diet had nothing to do with TS. I asked about weening him off medication to see where he is two yrs later without medications, and he denied my oppinions. He took him off one of the meds and added another. It seemed to help him, but only for a couple of weeks, and again right back to the same problems. I took it upon myself to take dairy out of his diet, and added soy. With that I had seen another dramatic change for the better, and now back to the same black hole. The end of this month he has his 2nd appt with this new doctor, and I am going to demand that they do tests now with all the meds he is on. Then ween him off and test him without, and see where he actually is neurologically at 8yrs old. This last week, he has been throwing tantrums like an infant. It was really scary, and 4 out of 5 days in school he spent with either the nurse or the principle who called me to come get him. What are we suppose to do once he is no longer able to function. I don't want to lose my beautiful little boy, nor want to see him suffer. I really truly believe that medications should seriously be monitored in our children. My son has never received any other tests since he was 6yrs old. He sure has taken alot of med's though.