I am trying to figure if my daughter has PANS. She was hospitalized at the end of August with a respiratory infection that they said was atypical pneumonia. After this she started to have OCD flares. SOmetimes it would be bad, extremely worried about germs, itchy her skin like crazy, crying that she doesnt know how to stop, using lots of hand sanitizer and washing hands. Then it would get better. I noticed that when she had some respiratory thing going on, her symptoms were worse but just thought she had some OCD. On Christmas Eve she ended at urgent care with another respiratory infection. She went home on prednisone and the next day had severe onset OCD. Lots of crying/screaming, using hand sanitizer till her hands bled, going to the bathroom a lot, wiping obsessively because she didn't want to have pee drips, changing her clothes repeatedly because she thought she was wet and she wasn't, not sitting on certain things, holding her hands together cause she didn't want to touch anything, nightmares and screaming at night worried about being tired. We could not leave the house for a couple days because it was so bad. After a few days, it got better but her OCD is still here and worse than before. Strep test were negative.
I plan to make an appt tomorrow with a dr. that specializes in PANS (Dr. Jolan Walter at Mass General is who I want to see if anyone has experience). Trying to see what people with PANS/PANDAS experience think. Does this sound like PANS?
Thanks for any insight. This is all so new and overwhelming to me.
