CJsMom

We plan to attend the symposium as well as the dinner. Maybe we could post a message is hen and where to meet up, f they have a message board See you there!

DS was misdiagnosed with bi-polar disorder in 2009. He was "treated" by a child psychiatrist and after many prescription drug trials his condition did not improve at all. What we had was a drugged out son from 9-11years old. He was sttill raging, suicidal/homocidal, unable to function at school, extreme tics, OCD, etc. Through what I believe to be divine intervention, a stroke of luck and being in the right place at the right time, I met Dr Kiki Chang at Stanford. After a short conversation he asked me if CJ (ds) had experienced a sudden and abrupt onset of tics and OCD. When I told home he had, following an extreme case of the H1N1 virus, Dr Chang told me to call the PANS Clinic immediately. Very shortly after this CJ was being seen by Drs. Chang and Frankovich, who later dx'd him w/ PANS. He has been a patient for 19 months. Unfortunately, CJ has not improved drastically. He still has flares when he has a bacterial infection or severe allergies. This time of year is especially difficult for him. I highly recommend the PANS clinic and Drs Chang and Frankovoch.