pcd

If anyone wants to see the script he gave me, email me directly and I can send it to you. I it is titers, Ferritan, Lyme, I don't know all of this stuff...Pat

Hi, Dr. T. in New Jersey says my boys may have selective streptococcal immunodeficiency based on the bloodwork panel he did on them. Is this a cut&dry diagnosis or is this an diagnostic impression based on the histories/info I gave him coupled with hypotheses related to the bloodwork results? Do all kids with PANDAS have this? What does it mean exactly? Thanks. Pat

Hi, I am in Michigan and b/c we were planning on going to NJ this summer, I had someone recommend Dr. Triffiletti for possible diagnosis and treatment of PANDAS. I some discussion of Dr. K in Illinois and looked him up. It looks like Dr. K is less supportive of treating with antibiotics and the prednisone than Dr. T. Dr. K seems to be a big fan of the IVIG, whereas Dr. T seems to do the antibiotics and other treatments first. It doesn't sound like IVIG is going to be covered by insurance??? So my questions are: what are others opinions about IVIG versus the antibiotics, etc.? How much does IVIG cost? How many times does a patient need to get IVIG if diagnosed with PANDAS? Thanks for all of your help! Pat

Dear Carol_lsc, My son has autism and a 4+ sensitivity to coconut, amongst other things such as soy, eggs and rice, so along with being on a gluten-casein free diet, I am trying to figure out how to eliminate as much coconut as possible. Your earlier post was helpful and I was wondering if you have found anything without fluoride and coconut to use as a toothpaste? My son is 4, so baking soda might be a difficult sell. Thanks for your help. PCD Please feel free to e-mail me direct. Thanks! PCD