Jump to content
ACN Latitudes Forums

ashley

Members
  • Posts

    31
  • Joined

  • Last visited

Everything posted by ashley

  1. Thanks, cara. We have not made any dietary changes yet (just diagnosed last month and had hoped abx alone would fix things.) My DS is vegetarian, so I'm hesitant to remove gluten and dairy from his diet, not to mention soy and corn as Dr. Bhakta suggests . . . but if it makes a difference then we will figure out how to do it I guess!
  2. Thank you so much for posting the link to the power points, cara615! Most of it is totally over my head, but I am trying to sift through Dr. Bhakta's information. Hoping you might be able to clarify something for me. At one point she says to use a diary-free (cow's milk) diet but then later she says to increase glutathione using bioactive whey protein which should come from non-pasteurized, non-industrially produced milk. So does that mean we can keep milk in our diet if it is non-pasteurized and non-industrially produced?
  3. My DS (10) was diagnosed by our pediatrician with PANDAS and is currently in the first month of a 3 month treatment cycle on zith. He has several motor and vocal tics and a range of anxiety and sleep related issues. This morning we took him to a pediatric neurologist for a second opinion, and as we suspected she discounted the PANDAS diagnosis and said all the emotional/anxiety issues were caused by stress from the tics. She prescribed clonidine to help him sleep and said it may ease the tics as well. Curious if anyone has experience with this? We are sticking with the abx but are worried that if we are also giving him clonidine we won't know if the abx is working. Part of me thinks it doesn't matter as long as the tics go away and my happy child comes back, but part of me really wants to know the root of the problem so we can be prepared for the future.
  4. We are five weeks into this now, and it is unbelievable how all-consuming it is. We did 5 days on azithromycin, and like everyone here said it was not enough. We started to see some improvement (on the 5th day he said the "bad thoughts" were gone) but a week later the tics have increased dramatically, as have his headaches, and he is full of frenetic energy. We have a doctor's appointment this afternoon and I am terrified I won't be able to convince him to start the antibiotics back immediately. Please think good thoughts for us . . .
  5. Thank you all for your responses and suggestions. We are very lucky to have a wonderful pediatrician! I have not tried Motrin yet, but will see if it helps. @ktdommer, my son has been complaining of headaches over the past few weeks but no specific stomach complaints. If I may ask, how have all of you dealt with talking to friends, school, etc. about this condition? My husband thinks I am talking about it too much and that is causing my son to tic more, but I really don't think that is the case. The stress is really hard on all of us.
  6. When my 9 year old son developed tics in November 2012, everyone told us that this was fairly common and would likely go away in time - and after several months it did. Just over a year later, they came back stronger than ever. With the new tics my son also began to exhibit what we thought were signs of emotional stress, and that is what caused me to call our pediatrician. The doctor immediately suggested that the abrupt onset of tics could have been caused by strep and brought us in for blood work. My son is now on azithromycin and VSL#3 for 5 days, followed by an anti-fungal. We have a follow-up appointment with the pediatrician on February 4th. After finding PANDAS information online, I now realize that what we thought was stress brought on by the tics might actually be separate symptoms. In the last week my son has developed extreme anxiety at bedtime and says if he isn't with me he is overwhelmed by "bad thought." He hasn't slept in his own bed for a week! He also had 2 very bad days just over a week ago where he was angry and defiant and had a huge meltdown over something very insignificant. It doesn't sound like much to go on, but this is NOT typical behavior for my child! I just don't know how to tell if it is caused by normal adolescent hormones or if this is a part of PANDAS? If anyone can offer advice for things we can be doing to help him, I would really appreciate it! Are there dietary things we should be avoiding? Supplements? How do I protect him from further exposure to strep? I am feeling totally overwhelmed!
×
×
  • Create New...