Tattoomom

Do you have a link to that study?

Life has been sad in the Thoren house. We were hit last month with a cold/cough that didn't miss any of us, and my Olivia (10), who has been my least affected panda, has totally changed were since being sick. She was diagnosed at 7 with over-night onset and tested pos for strep, but was never as bad as her older brother and younger sister. Now, she's crippled with OCD and intrusive thoughts. She's completely lost her spark. She sad and scared. I am so over this and hate that it fucks our lives up so much... Robbing my kids of childhood. Dammit. So, I stepped up her abx from prophylaxis to treatment and have an appt for next week with the Psychiatrist. What can I do to help her? Giving Advil & Fish oil. She's not the same. My little girl is like an empty shell. Tricia

Only MTHFR. I want to do the 23andme testing soon. How are you treating it?

None that I know of... maybe I can post her lab result...

Could the T&A have caused this horrible tic flare!?? What do I do?!

The good news is- Ava's Lyme test was negative. The bad news is- her MTHFR came back with 1 copy- C677T.

Ava had a tic come up wight after her T&A surgery 3 weeks ago. Despite being on Tenex, it's gotten WORSE! It was just a neck/shoulder/head tic, but now she's making a noise with it and swallowing/gulping. It seemed to get worse when we switched from Clindamyacin to Augmentin a few days ago. Does this mean Augmentin isn't a good choice? Should we go back to Clinda??

What are your favorite, affordable, strep-free probiotic brands?

She's had several strep infections, even breakthrough strep.

Starting to have my reservations about Ava's T&A surgery! The closer it gets, the more I want to back out!! I'm not afraid of the anesthesia or the actual surgery really, just the recovery. She doesn't heal very well. The first few years of her life, she had a compromised immune system and even at 4 years old, she gets infections very easily. I'm sooooo worried about her getting an infection and regretting letting anyone cut on my girl! The child ended up in the ER a few months ago with a massive infection on her foot from stepping on something that barely broke the skin! Is this surgery really worth it?? She never had high titers so that's not something we're watching. We're just trying to eliminate strep. I've heard mixed reviews about T&A keeping strep away.

Talk to me about Tonsillectomy/Adenoidectomy surgery. ENT yesterday went well. Scheduled for surgery Aug 9th. He said he'd like for her to stay over-night, but left it up to me since I know her best. If she stays the night, they would have to keep her sedated. She has MAJOR medical anxiety. I can see her yanking the IV out and screaming and her poor raw throat killing her. What did you all do? What are the protocols before during and after surgery? Abx wise. How did your kiddos due with the surgery? BTW- she's 4.

I'm not seeing MTHFR on the 23andMe website? Do you feel like the test was worth it? Did it give accurate results?

Our Ped offered to test for MTHFR, but said it can interfere with getting life insurance later. Thoughts? What test did you use when you checked for it? Lyme... we haven't tested for that yet either. Again, which test? Did insurance cover these tests or is it typically OOP? What are the treatment protocols if found to have these?

We did test for mycoplasma, which was negative. Never tested for Lyme, but she's never had a tick bite. Not sure if there's other ways to contract it?

The fact that she responds so well to steroids, does this mean she's a good candidate for IVIG? Any ideas on how to find out if there is an infection lurking? We have an ENT appt. scheduled for July 11th to see about a T & A. We have a wonderful ped who has helped us thus far and she wanted us to lower the daily dose of Zith to M,W,F, but obviously, that back fired. Any advice on combo abx?