Thanks for all of your responses re: my post. Thought I would provide an update: Our family doctor returned from vacation and we were able to get the abx extended for an additional 4 weeks. I was also able to do a phone consult with the PANS specialist we saw for dx of PANS in Florida who noted if we were sure he was exposed to strep that we should give him abx for 4 weeks. My son is doing much better since being on the abx. We are going to wait and see how he does after this round of medication and reassess the need for long term abx as a prophylaxis to reduce future exposures. For now we have several refills for 4 weeks of antibiotics so we can fill it as needed without having to go back to the doctor if he gets sick again.
