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SAS

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  1. Hello, I live in Nova Scotia Canada & my 11-year-old son is scheduled for a tonsillectomy in September and I was wondering if anyone knew of a physician recommended ABX treatment protocol for pre & post surgery? My son has been dx with PANS 5 years ago and we are hoping that the surgery can help reduce the frequency of flares. The ENT plans on giving him IV ABX during surgery along with a 2 week supply of ABX to take after the surgery. I remember reading something about a specific ABX protocol to follow before and after surgery but can't seem to track down that information now. My son takes prophylactic ABX regularly but I was wondering if he should be bumped up to a treatment dose 10 days before the surgery as well. Any information you can provide would be helpful. Thanks.
  2. Thanks for all of your responses re: my post. Thought I would provide an update: Our family doctor returned from vacation and we were able to get the abx extended for an additional 4 weeks. I was also able to do a phone consult with the PANS specialist we saw for dx of PANS in Florida who noted if we were sure he was exposed to strep that we should give him abx for 4 weeks. My son is doing much better since being on the abx. We are going to wait and see how he does after this round of medication and reassess the need for long term abx as a prophylaxis to reduce future exposures. For now we have several refills for 4 weeks of antibiotics so we can fill it as needed without having to go back to the doctor if he gets sick again.
  3. I am looking for advice re: PANS and an exacerbation of PANS symptoms in my child. I had strep throat recently and although my son did not get the infection he developed some of the typical PANS symptoms and is clearly having a flare up. When my son has a strep infection we know to treat with 4-6 weeks of antibiotics however we do not know what to do when he is exposed to strep but is not personally ill with the infection. Wondering what has worked for others? We have started him on a course of antibiotics and have noticed dramatic improvements although we do not know if we should do the full 4-6 weeks or stop after a 10 day course. We live in a rural area in Canada and took our son Florida to be assessed and diagnosed, local doctors do not know of PANS or how to treat. We were given a great report from the FL clinic but it did not indicate how to treat a microbial excacerbation. Any advice?
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