marajo

Dr T wanted us to stop Motrin when we started on the antibiotic so we knew the Biaxin was working. Motrin wasn't problematic for DS at all. When we saw the LLMD here, she suggested the Curcumin but as I said, we haven't used it yet. Good luck!

Maybe ask your doctor about using Curcumin (natural anti inflammatory). Not sure if it works or not but was suggested to us by our LLMD when we had to take our DS12 off Motrin. We ended up putting him on Biaxin and it seems to be working almost as well but bought the Curcumin to have in the house just in case. When we were waiting for our initial blood results the dr. said to put our DS on Motrin around the clock, and it was like we got our child back. So in our case, the Mortin was a huge help. By the way, we took our DS off the Intuniv (he was only on 1mg) when put on Biaxin .

My DS12 also has Myco. Dr T put him on Biaxin but did not suggest that the rest of our family should be checked. Should I request that we all be checked for it? DS been on for 1 month and is doing so much better. Also tested positive for the Lyme screener but haven't heard anymore on that. I emailed Dr. T to ask how long he thinks my DS will be on the Biaxin because he never mentioned that in our conversation (and we were just too overwhelmed with the whole thing to even remember to ask). Haven't heard back from Dr T and we are all wondering. Do I ask about a combo? I know everyone is different but is there any "normal" time range on when levels get within normal limits? Our DS has been dealing with his symptoms for many years and was just diagnosed PANS. We had never even heard of it. Thank you!!

Hi there! My son was just diagnosed with PANS. His was not an acute onset though and it seems like everything that I read says it is always acute onset. As far as I can start to settle out from what the doctor said, my son has a low auto immune system- his IGM levels are low and he has a microplasma infection. His screener tested positive for Lyme but the doctor said that the hospital will send it out for further testing regarding the Lyme issue. He was put on Biaxin 2x a day with Culturelle between. Does this sound right to others? Any suggestions on how to explain this to my friends/family/summer camp in an easy to understand way? Any other suggestions and anyone else out there whose child didn't have an acute onset. My son is 12 and we have been dealing with all these issues for years now (mood swings, tics, sleep issues, stomach pains, hyperactivity). Thank you!