my2sons
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When we went to environmental physician 2 monghs ago ds was ticcing (mostly vocals) pretty much all day. Dr started him on high dose muti, borage oil, p-5-p, magnesium citrate and a probiotic. We also started him on GFCF, no artificial anything, low sugar diet. We saw improvement with the supplements and it tapered off a while then picked up again. We started using candida clear a few days ago. Saw some increase in tics with that but nothing dramatic. Today i decided to just give the candida clear and nothing else to see if we got more herxing. And...nothing. we had less tics today than we have had since his tic explosion in February. What could this mean? Could it have been as simple as diet and after 2 months of clean eating his gut has sufficiently healed to the point that the supplements are now more of a henderence than a help? Is this possible? Has anyone seen a dramatic improvement with diet alone?
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Have you tried eliminating dairy? Or IgG Food allergy/sensitivity testing? I have read some people had success with that after eliminating the foods that come back with the highest numbers for sensitivities.
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It is all overwhelming. Don't worry though. There are lots of other things you can try. Have you checked out the Feingold diet? That may work better for your guy.
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well, the reason I ask, is the first phase of the CSD is the intro phase which is basically just protein for 2 to 5 days (we are going to shoot for three days). He can have chicken soup (made only with chicken and carrots), turkey breast, turkey burgers, hamburger patties, chicken breast, eggs, and I think lean pork (like boneless, lean pork chops) and I think cooked carrots. the meat can be broiled, boiled, baked and maybe grilled. He can eat as much as he wants, He just has to eat only these foods for up to 5 days. drink only water or green tea and I think coconut water, maybe. you can google CSD diet and find the info. I know that two to three days of this kind of eating will put one in ketosis which will decrease his craving for sugar. after the intro phase you start adding back in other foods slowly, one at a time over a course of a few days to see how he reacts. This is what we are going to start on Friday. I can't wait to see how his tics are when doing this or after. They advise that you will get a die off reaction and they will feel very bad in the beginning because of the detox. You will have to Google and read to see if it is something for your DS. The book does suggest stopping all supplements in the introductory phase and then slowly introducing them back in one at a time. There is a book to guide you: We Band of Mothers and/or Breaking the Vicious Cycle. Also some Web sites pecanbread.com and breakingtheviciouscyle.org. Good info out there. It is suggested to read one of the books all the way through prior to beginning. My understanding is it is an all or nothing diet.
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It's worth a try Cara. I think he will surprise you. Does he like chicken? Hamburger patties? Chicken soup? Turkey breast or turkey burgers?
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I don't know about the NAC. We have not used it before.
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I experienced the same as logismum, Cara. My DS will try so many more foods now. He asks for diff foods and does not seem to crave the sugar he once did. He wants more protein now. You will be surprised what kids will eat when the are hungry. I just removed all offending foods from my house so they (or me) did not have a choice. Both of my kids eat so much better now. And they do not fight it anymore. I might also add that they seem more in control of their eating too.
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Currently, we are on a GFCF, no artificial anything, no white sugar diet but next weekend we are starting the Carbohydrate Specific diet. My DS is 9, soon yo be 10 and I have been praeching the importance of diet to him all his life so he is actually eager to do whatever I throw at him. I love him. He is such a champ. We also take a probootic and various oyher supplements: borage oil, multi, magnisium, epsom salt baths, cherry juice, l -carnitine, flaxseed oil, p -5-p. He hss improved about 50% and then stopped. Still tics a good bit at night. His tics have started morphing since starting the candida clear (his are mostly vocal) and he is making some really odd sounds. We also use coconut oil. It' s really good on toast with pnut butter or jelly ( i use polaner all fruit) . Also, check out chocolate covered katie.com for some great gfcf recipes using sugar alternatives and coconut oil. I make everything for my kids from scratch. Stay away from processed foods as much as possible. We have only just begun this journey too ( about 2 months in) and i know healing takes time. Many parents post it taking 6 months or more yo see the results of a good diet so i am holding on to that hope. I will say this, my DS just started basketball for the first time and he was the ONLY kid still on his feet, and not even breathing heavy, after the suicide sprints.
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New: Study Debunks Lyme Disease-Autism Link
my2sons replied to Sheila's topic in Autism Spectrum Disorders
Can I ask a crazy question? How is the Lyme being contracted? Isn' t lyme contracted via ticks? Just asking because i have not tested my DS for lyme because he has never had a tick as far as I know but wondering if i could be missing the boat with this. -
Cara, please know you are not alone in this journey. We too are just starting with Candida Clear and experiencing herxing. I just keep telling myself this is a good thing, kind of like pain from giving birth, it will result in something good on the end. I thank God daily for this Web site. The support it provides is immeasurable. Hang in there. I believe whole heartedly that this journey ends well for all of us.
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How do you know when it is herxing or a negative reaction to a new supplement? I started the candida clear yesterday and tonight ds has a new, persistent vocal tic. He usually only has one persistent vocal and a few infrequent, brief vocal tics we rarely see/hear. Tonight he started with what sounds like a snake hissing/ spitting sound that was persistent. This was about 2 1/2 hours after giving him the Candida Clear. He began flipping back and forth between the hissing sound and the loud "ah" sound with a laugh thrown in here and there. Not anything he has done before. Is this what i can expect from the herxing? Or could it be a reactoon to someting in the supplement?
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Chemar, how long on the Candida clear before you saw a positive response? How long did you guys have to stay on it? Did you see herxing?
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Yes, hsve read up on pans and pandas And may have him tested. His syptoms have never been as extreme (except when triggered by the focalin and those stopped as soon as we stopped the med) So do you think it could still be that? His tics are mainly vocal - mostly a yell or scream that varies in intensity. Very annoying when constant. He is not a very sick kid. Maybe a cold or two a year maybe one stomach bug a year that usually resolves in less than 12 hours. He di just have an ear infection but it was his first ever. He was sick a loy when he was small - had herp angina, fifths disease, rota virus, strep a few times- but since he was about 5 he has been pretty healthy.
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Thinking of starting my son on Candida Clear by Now. We did some yeast eradication (via RX) about 6 weeks ago and saw some improvement in tics and ADHD symptoms. But, he has since been on an antibiotic for an ear/throat infection and I noticed an increase in tics a few days after starting the antibiotic (nothing dramatic, but definetly a noticeable increase.) He does take a really good probiotic but I am concerned the antibiotic could have undone any progess we made with our previous yeast treatment. I have some of the RX left - for a reason he has yet to reveal, our Doctor gave us 4x's as much Rx as he initially prescribed - but I have since read some negative stuff about the RX (Nizoral) and prefer to use something more natural. I have heard good things about Candida Clear. The bottle says it is for Adult use only. Can someone advise how much I should give ds (9) and how frequent? He weighs 86 lbs. Can anyone advise what I am to expect with it and anything to look for? How long will it take before seeing positive results if any? How long should he take it? Shannon
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Hi logismom. Thanks for the reply. No, we do not avoid corn yet. Hoping the IgG food testing will tell us what more we need to avoid. Hoping to get that test sent to the lab tomorrow. We have only been GFCF, all natural for about 6 weeks and he has had a few slip ups with grandparents and school so it has not been 100 %. I know that it needs to be 100% to truly know the affects. We did a yeast med for 10 days and that did seem to help. But he hss since been on an antibiotic for an ear/throat infection and he seems to have back slid some from that. That is why i am considering candida clear. I will post on the othe forum. Thanks!
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Hello. I have been reading from this Web site for some months now and I have to say this is such a wonderful tool - one that provides hope for conditions that so few doctors are willing to give you hope for. So I want to begin by saying "thank you" and "God bless you all and your families" to those who created and support it. My ds (9) has always been a challenging kid. Since the age of 3 he has been excessively hyper, doesn't listen, does not respond to discipline the way other children do (can't tell you how many times I have been told I need to spank my child - even by teachers), used to pitch temper tantrums when he did not get his way - I mean the kicking, screaming, destructive, can't calm him down kind that would last 45 min or more (he does not do this anymore, although when you tell me he cannot do something he cries and won't "let it go") very impulsive, immature, talks constantly, and he has a learning disorder in the form of language comprehension/expression, and very annoying (and by this I mean he purposely annoys people), gets overexcited and acts ridiculously silly. He still says things that make no since, he can not tie his shoes, he is just now learning to tell time. He is very negative and morbid (uses terms like hate and death and dying daily), has low self esteem (although he is good a great many things and we show him unconditional love and support/encouragement and he has a very big loving family), he has sleep or night time issues. For whatever reason he has a lot of anxiety at bed time (his tics get bad then). And he has separation anxiety, although not so severe he will not go to school. He also has a history of panicking in unknown situations (and has had a panic attack) but he has gotten a lot better about staying calm and waiting to see what happens first. When ds was about 5 he started with bad allergies. We put him on an OTC allergy med. When he turned 6 we had him tested and found he was allergic to grass, cats, dust mites, mold, trees, weeds. Doctor put him on singulair in addition to the OTC we were taking (I know, I know...). The meds helped for all but this little cough he had, mostly at bed time so he prescribed Nasoquart. that seemed to help and the little cough stopped shortly after the nasoquart and never returned. I look back now and wonder if this was his first tic. At age 6, he was also diagnosed as severely ADHD and put on Focalin XR 10 mg. He stayed on these meds until he was 9 (wish I had known then what I know now). These meds affected his mood making him grumpy and anxious and made him have difficulty falling asleep. It would take him hours to go to sleep. Within days of turning 9 (in late August - weed allergy season - this is also when he had the "little cough" that time), his tics started. He started with a mewling sound, kind of like a cat. it was soft an fairly in frequent. A few times he did a punching out with his arm like he was throwing something down on the ground, this also was infrequent and lasted a week or so. Then he did the chin jutting a few times, but again, infrequent and did not last long. Then his voice started changing when he would read at night. going up and down, changing in tone, etc. The tics stopped at x-mas and when school started back and we started his focalin again (we did not give it to him when he was not in school because he hated it), his tics exploded with loud yelling and full body tics. I stopped the focalin immediently, weened him from his allergy meds, and since then his tics have been primarily vocal- a loud yelping/yelling sound, a weird "chi" sound if he hears anyone shush anyone, an occasional laugh. We are working with an environmental physician. So far he is on allergy injections (these have helped a lot with his allergies), a multivitamin, borage oil, magnesium citrate, P-5-P, probiotic, L-carnatine, Epsom salt baths, GFCF diet, no artificial dyes/flavors/preservatives, low sugar. We have seen about 50% improvement. I would like to see more. We just send off a hair sample to test for metals. And I just order the test kid from Great Plains Lab. to test for IgG food sensitivities. I have noticed that sometimes his tics increase after eating something. but I cannot narrow it down. We eat mostly whole foods and the occasional minimally processed organic snack (like GFCF popcorn, all natural pressed fruit, etc,) but mostly I make everything for them from scratch. Thinking about maybe trying Candida Clear. I personally am Gluten/Caesin sensitive and Cane sugar (self diagnosed for years now) so I am seriously wondering if his tics are not caused by food too. He does tic sometimes in his sleep, although not consistently. Maybe two of three tics a night so I was thinking it is not TS. Although he has a first cousin with mild tics (he is 11 and has throat clearing and chin jutting, head jerking since he was also just turned 9. what is it with the age 9? I will be terrified when my 7 yr old turns 9). Anyway...that was a lot, I know but would appreciate any thoughts, suggestions, words of encouragement. Although ds tics are mild not as bad during day, they are still pretty bad at bed time. Thanks, Shannon