Karenna16

Not being able to get my nephew out of the house and to doctor appointments has been the absolute biggest challenge so far for my sister and me. We have no family living around here and no friends available to help us physically get him out when he refuses. I tried to lift him off his bed one time and he was like a ninja, not attacking me....but escaped and hid very well. I don't know what I was thinking.....I knew it would never work....but I felt I had to try anyway. So, after not ring able to get him out of the house for a few very, very important appointments.....we decided he needed to go to the emergency room. We were desperate to get him seen! We had it all planned in our head how it would play out. I called an ambulance and explained that we needed to take my nephew to the hospital. I tried to tell them that he is not in any immediate danger and we just need help getting him there. They have their own protocol and did not want to talk to me until I dialed 911. To make a long story short......after calling 911......two police officers arrive. It was devastating for my nephew. He was hysterical and sooooooooooo mad at my sister and me. One of the worst days of my life, really. We did not give him any advance warning so he would not try and run inside a closet. He was just sitting there playing a video game when two armed cops come up behind him and tell him to shut the game off. The look on his little face was something I will try very are to forget. I mean this is a little boy that weighs 73 pounds and is an angel. A gem of a child.....just very sick. He ended up getting in my car and we got him to the ER. The hospital ended up being an extremely, amazingly disappointing experience. But.....the one good thing that came of this experience.....the next morning my nephew got in the car to, finally, meet a pediatrician that was going to help us.....once he met my nephew in reason, that is. My nephew was too scared to not get in the car.....afraid the police would come again. That appointment proved to be pivotal in getting my nephew the help he needs. I completely understand what you are going through. We are gong to see a pediatric neurologist soon and I am terrified that he will not go. My nephew was given some Xanax to calm him down......it does quiet him a bit.....his tics are literal,y non- stop......some last 25 minutes or more....verbal tics. We also started him on Luvox and it seemed to take the edge off of his madness enough to get him out of the house. But....,he is now refusing the medication......his whole sensory system is on fire.....he cannot swallow pills....so we crush the Luvox and give it to him jello. Well, the grittiness is too much for him to handle and he refuses to take it. Our pediatrician is working with a local pharmacy that does compounding....they are working on producing a liquid form of Luvox, custom made for my nephew.....they are trying to make it in a nice flavor...my nephew is requesting bubble gum. So, we shall see.......without the Luvox, my nephew is just a complete mess.....with it, he is a bit quieter. So, I am praying that he will like and take the new form of Luvox before the neurologist appointment. Otherwise, I do not know if we will be able to eat him out of the house. My nephew wears shoes.....no socks....it would ate him half an hour to choose a 'good' pair of socks........he decided to skip the socks one at and it eloped. But now it raked him 20 minutes to put his sneakers on. My nephews reasoning skills are completely out the window. We cannot punish him or argue with him.....he is not capable of reasoning at all...pretty much an impossible task. So, sorry for the long post.....it is my first time posting about my nephew since this all suddenly started in March. I just wanted to let you know that I know exactly what you are going through! You finally get an appointment and when the day comes....the kid will not go. It has been a complete nightmare! Hope more people write of their experience in getting our sick children out the door. Thanks for the post.