Dear all,
I am new to this forum and learning so much from all of you!
We are rapidly loosing our 21 yo son to severe OCD. He had on and off OCD symptoms since the age of 5, but nothing too dramatic - cognitive rituals, contamination issues, anxiety, need for constant reassurance. It was blamed on divorce, moving, me working 80/h week. However with every exacerbation obsessions got worse. In mddle school he was debilitated by fear of developing a bold spot, which resolved eventually morphed into anorexia for 6 months, then, contamination blossomed.
He was always anxious, but managed to get into great college where he crushed. He was treated with Luvox, got severely manic - his psychiatrist was elated, that " we now have a real diagnosis of bipolar". He then was in one of the top residential OCD programs for 12 weeks and got much worse. With all the treatment, he only got worse. A year ago he was still deciding between economics and premed, today he would not shower, would not put his socks on, cannot read as it triggers his cognitive rituals.
I feel we are on the wrong track with CBT and all that. He got tested for PANDS by Dr.K - the only thing that came back mildly elevated is antiDnase. ASO, tigers all negative.
We started Augmentin 875 twice a day 11 days ago, but no significant improvement other than his mood is more stable, less rage. I am willing to pay for his IVIG as we are loosing ground very quickly.
Would really appreciate any thoughts, experiences or suggestions.
All the best to you!