jojos_mom

Thank you, LLM! I totally agree. Other SNPs may need to be addressed. I actually ordered the 23andme genetic test and it came in the mail today. I am looking forward to expanding my family's path to healing! :-)

Thank you LLM...I needed that reminder! I want to do EVERYTHING in my power to help my children be as healthy as possible. I feel fortunate to live in a time where we have such tools, as a genetic test, readily available. :-)

So touching...definitely sounds like our family...LOVE that quote, Lisa.

I think it was just added this week. A step in the right direction! http://en.wikipedia.org/wiki/Pediatric_acute-onset_neuropsychiatric_syndrome_(PANS)

Definitely get a PANS specialist involved, especially if he is not too far from you. Many local doctors still don't have enough information and some of the information is very new, including the criteria in diagnosing PANS, which was recently updated in March 2012 to now include Mycoplasma among other triggers, not just strep. That being said, last year, my DS9 had Mycoplasma and, soon after, started having very similar symptoms of hoarding, repeating, dark circles under the eyes and lethargy. Mycoplasma, at the time, was not yet on the trigger list, so when I suggested to our pediatrician that it may be PANDAS because of the sudden OCD symptoms, he ruled it out after the strep culture/bloodwork was negative. How unfortunate! It took over a year to get the correct diagnosis and treatment and with an out-of-state doctor no less! One thing I did make sure of was to provide our pediatrician with a copy of the latest NIMH findings to avoid this from happening again.

Congratulations...what great news for you and your family!

My DS also complained of a stomachache when he first started taking Augmentin 6 weeks ago. He takes 600 mg (2 x day). Dr. B advised us to give him the probiotic at least 2 hours after he takes the antibiotic. His reasoning was that the antibiotic was also destroying the good bacteria from the probiotic. So, we give him Augmentin in the am and pm, and when he gets home from school, we give him the probiotic. This system seems to be working the best. We have had no more stomach complaints!

Congratulations! Thank you for sharing...it gives me hope and renewed strength to persevere.

When it comes to finding the correct treatment for my child, I will shop til I drop!

My DS9 was just diagnosed on 8/29 with PANS having just Mycoplasma, no strep.

My DS9 gets them too once in a while. We do warm water and sea salt rinses (1 tsp salt per 1 cup of water) which seems to speed up the healing.