Jaal

Thank you!

Thanks for the responses! I believe in how IVIG works (my Son has shown good response to Augmentin and infrequent Ibuprofen with his tics...behavioral issues still exist....but the Tics are the hardest to deal with in my opinion). Dr K did not promise any cures....he just believes IVIG will become the standard treatment in the future. My concern only arose from his confidence that 1 treatment would most likely be all that was necessary....that seemed to conflict with everything I was reading here (Are some Candidates with PANDAS more likely to respond to 1 Session of IVIG than others?) Good point POWPOW that some who have been succesfully treated might have moved on from this Forum! I would love to conduct an IVIG poll on this Forum where people could reply with how many sessions were necessary to see consistent improvement. (OR how many they have received with no improvement).

Hi All I had a phone consult with Dr K, and without seeing my DS6, he was certain he had Pandas and recommended IVIG. He also assured me that most likely (80%) he would only need one IVIG treatment. I was ready to sign up but it seems that everyone on this board has had multiple sessions of IVIG. I have only read of 1 or 2 cases where the IVIG was performed once and had great results. So naturally I am concerned that I am being conned...even though I know Dr. K is extremely reputable. I would love to hear from anyone who has had IVIG performed (how many times they were told they would need to have it)....especially from those who had it performed only once and saw great improvement. Thanks so much in advance for any insight that can help me make an informed decision!