Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited

  1. Help with 504

    airial95 - I like your suggestions on how to present symptoms in a matter of fact way and your idea of being to the point about what he needs to be successful academically. I am glad your little guy has got a great plan in place. I am sorry you are having to deal with 2 children with this. Thanks for the info on your son's plan - I like the self regulation wording. The teacher has done a great job of making modifications already for my ds, we just need to get it all into a 504. I feel more confident about getting this plan done now that I have some great suggestions. Thank you.
  2. Help with 504

    Smartyjones - Thank you for the link to the NIMH article - I did not have it. Also, I appreciate your perspective because I feel what happened to you is starting to happen to me. I will try to get things moving with getting his needs met and less about explaining PANDAS. Sometimes we just need someone to tell us to try a different approach - You did that for me. Thanks!
  3. Help with 504

    I would like to thank ALL of you who responded. You gave me some excellent advice. I will definitely have the doctor write a letter about my DS10 PANDAS as a medical condition and all that he needs. I had already given the team some information about PANDAS from the Pandas Network and the Psychologist had written a letter about my DS10 OCD and the modifications/accomodations he would need. However, this was not enough for them. The don't seem to be getting the "medical" cause here. They seem to feel my child is acting out when he has an anxiety attack. It is very frustrating to me. I will try to gather some more basic information to share with them. I really appreciate having other Moms to turn to here. Thank you for listening and for all your super advice!
  4. Bleach baths for Strep?

    I am not sure about the bleach ratio for a strep bath however, my son has a pimple like rash that appears when he has a flare. We were told it was folliculitis and given topical antibiotics. We have used the topical antibiotics with little results. When given oral antibiotics, the rash will usually clear up in a few days along with reducing or eliminating his PANDAS symptoms. I consider the rash one of our early warning signs that he has a Strep infection and needs the oral antibiotics. Zithromax has cleared it up for us. I hope this helps.
  5. Help with 504

    I am new here and dealing with the elementary school regarding getting my child a 504 plan. The school keeps insisting on a Behavior plan instead. My child is fine when not flaring and maintains excellent grades. However, when there is a flare, my child can experience high anxiety and requires shortened assignments, more time, etc. to get through school work. Any ideas here? Thank you!