allboysmom

I also heard the the more infections the child has had and the length of time you've been dealing with it, has to do with how many IVIG treatments are optimally needed but everyone is different. My son is 15 and has been dealing with this since he was about 4. However, we were just recently diagnosed (year and 1/2 ago after MANY misdiagnoses) and now see dr b and we're "awaiting" insurance approval for it...which most likely won't come so we'll have to figure it out. However my son also most likely has Lyme so we're going to see dr jones next wk (have had appt for 4 months) so pretty complicated and chronic case since so many years have past.

Hello all, I am new to this forum and to commenting on any blogs/forums sites so I apologize if I do something wrong or not post correctly. Anyways, I have a 15 yr old son who has OCD/Tourette's/learning disability and PANDAS (not sure if without the PANDAS, he wouldn't still have some of these conditions but not as bad). It's hard for me to say whether or not every bout of his tics, rages and OCD/anxiety are from a strep infection because it took us a very long time to put the pieces of the puzzle together. Long story short, my son has been in and out of specialty Drs. since he was 5 and he is now under the care of Dr. B in CT which my insurance won't cover and it's kind of far and inconvenient. However, I will do whatever must be done to get my son relief (hopefully LONG term) but I'm interested in knowing more about Dr. Pasternack in the Boston area. Minimaxwell, I noticed your posts about your daugher who is also a little older than the norm of patients with PANDAS and I was wondering if you could tell me when her symptoms started and how many years she had them prior to her IVIG. I have a feeling we'll need to go that route as well but there's now ay we can do it in CT. Please shed some light on which direction we should go...my son is on a high dose of Biaxin, aumentin, chlonodine for tics, sm amount of zoloft for OCD, etc. ALSO, he has a VERY high yeast count in his gut but will not adhere to a sugar free diet or gluten free or casein free as he should be. Thanks in advance. All of your posts have helped me and I've finally gotten on the bandwagon!