I also heard the the more infections the child has had and the length of time you've been dealing with it, has to do with how many IVIG treatments are optimally needed but everyone is different. My son is 15 and has been dealing with this since he was about 4. However, we were just recently diagnosed (year and 1/2 ago after MANY misdiagnoses) and now see dr b and we're "awaiting" insurance approval for it...which most likely won't come so we'll have to figure it out. However my son also most likely has Lyme so we're going to see dr jones next wk (have had appt for 4 months) so pretty complicated and chronic case since so many years have past.
