Ataloss12

Just thought that I would add to this. We received information on our daughter's bloodwork today and this is what Dr. T stated: "4. Immunoglobulins IgG, IgA and IgM are normal. However, several immune quirks are seen A. IgG4 and IgE are both very low (for example IgG4 - expected 36, found 7) B. IgG2 is relatively low (expected 267, found 205)" Not sure what all this means, as we haven't had our consultation regarding these yet.....

No recent vaccinations. We live in Indiana, but lucky to have found Dr. T. She is a little better, but not 100% yet. She hasn't been on antibiotics yet. We just got results back today and will have a consultation to discuss everything in detail. I will address the IgeneX/Lyme/Trigger with him. I am thoroughly confused with all of this!

All testing was ordered by Dr. T and done through LabCorp. He just sent us those results and we scheduled a phone consultation to discuss. I was just curious if anyone else had these type of results.

We received lab results back on our 5 yr old daughter. I have attached the info. that we got from our doctor. Can anyone help me interpret this? --------- 1. Streptococcal titers measured three ways are normal. However, see below. 2. Mycoplasma titers are negative 3. There is no evidence of Lyme disease. The p41 on Lyme IgG is non-specific. 4. Immunoglobulins IgG, IgA and IgM are normal. However, several immune quirks are seen A. IgG4 and IgE are both very low (for example IgG4 - expected 36, found 7) B. IgG2 is relatively low (expected 267, found 205) This cluster is seen in 70-80% of children with PANDAS/PANS and I call it the "PANDAS/PANS immunophenotype (PPI). When children with PPI encounter an infectious trigger, PANDAS/PANS symptoms may result. 5. Pneumococcal titers are low for 4/7 serotypes - this suggests she may be a "low strep responder" 6. Ferritin is low .This can be treated with supplemental iron 7. Vitamin D is very low at 15.6 . This can be readily treated with supplemental Vitamin D Thyroid testing is normal, and there is no evidence of autoimmune disease. Overall, her labs are consistent with PANDAS with a silent strep infection.

We had all necessary testing done and currently awaiting to hear back from Dr. T. Does anyone know of any SAFE, natural remedies to give children to relieve some of the OCD symtpoms? Thanks again for this forum.....this has truly been a god send!!

Thank you everyone! I am truly blessed that I found this forum!! Since my original post, I have been in contact with Dr. Trifiletti. He has been a blessing!! He ordered a series of blood panels to be done today. Hopefully that will give us some answers. Correct me if I am wrong, but if these tests come back "normal", can this still be PANDAS? I have read alot of information, but some is conflicting! We need alot of prayers right now.

Hello Everyone. I hope that I have posted this accurately, as I am new to this forum. I am at a loss and need some advice/direction. Around 4-5 weeks ago, our 5 year old daughter literally went to bed "normal" and woke up with "OCD like symptoms". This started as an emotional meltdown, saying that she thought she had drank bleach. My first reaction was panic and I questioned her, but she couldn't remember when or how she drank it. I was immediately on the phone with the on call pediatrician and we came to the conclusion that it wasn't possible for her to have drank bleach, or there would have been obvious evidence. Over the next day or two, she started crying and asking odd questions, such as "What would happen if I stuck a worm in my nose", she watched a cartoon where the character threw a ball at another cartoon character and broke down crying, asking "what would happen if I threw a ball at someone". She was going to the bathroom every 5 minutes, so we had assumed she had an infection going on and took her to the ER. They did a urinalysis and sent us home, saying that they couldn't find anything. We then took her to the pediatrician and they did an in office strep test and sent us for bloodwork (ASO Titer was done as well as toxicology to ensure there was no bleach drinking). We took her back 2 days later for a follow up and her regular pediatrician stated that all of her bloodwork came back "normal" and he could refer us to a psychiatrist if warranted, but he thought that "she was going through a developmental stage and was questioning things around her to see where they fit in her life". Her behavior progressed with constant "confessing" to things that she had thought she might have done, saying that she was having bad thoughts and didn't want to think those things. At one point, she told me that she "thought she hated me, but really didn't and didn't know why that thought popped into her head". We don't want to take her to a psychiatrist unless that is our last resort. We reassured her repeatly and have been very caring and informing her that all of these thoughts are normal (we don't want her to think that there is something wrong with her), we have been welcoming the "confessions and bad thoughts" and explain to her that these are clouds and for her to allow them to come into her head and let them float out. With this process, her crying spells have long gone, but she is occassionally coming to us for "confessions". I put on a smile when she is awake, but break down when she is asleep. I don't want my child to have to deal with all of this. I don't know what to do and not sure where to turn without having to take her to a psychiatrist and have her FEEL as if something is wrong with her. My question is - CAN THIS BE PANDAS, EVEN THOUGH ASO, STREP CAME BACK NEGATIVE? If anyone could please point me in the right direction, I would greatly appreciate it. Thank you and God Bless!!