Hopeny

Hi LLM, thank you for responding. Since the diagnosis is new, and we are just starting to try to get treatment, I would be most comfortable with a conventional medical approach with natural elements if that makes sense. Personally, I have used (succesfully) Chinese herbs, resveratral and astral fruit as fertility treatments for myself, but for my daughter I am just more comfortable trying all medical options first supported with natural options. If all western medical options failed, I would move to alternatives. I have started giving her foot soaks with Dead Sea salts and will start her on resveratral. Have been giving her more than the usual amount of fruits and also giving her DHA vitamins. If you can give me any recommendations, they are very much appreciated. When my peditraician told me the news, I knew it was bad but I had absolutley no idea how bad this actually is.

Hi, I am looking for personal referrals from parents who would recommend pediatric LLMD's they have seen. My 8 year old was just dx with Lyme (2 bands IGM positive), but based on everything I have read since the diagnosis she had signs of it in April 2010 and one IGM band positive when tested 2 weeks after her symtoms which I now know where classic Lyme. My peditrician has advised me she knows nothing outside of the 21 day antibiotic prescription (she gave one extra week that I requested,) and a rheumatologist wants to restest and was not very helpful. 2 weeks after the last dose, her symptoms are creeping back. I have received some referrals from board administrators, but feel very uncertain about going to a doctor without a referral from someone who has taken their child there. I would be grateful if anyone would PM me on this topic. We live in Wetschester NY, so New York, CT, New Jersey and PA would be most convenient. Someone who takes insurance would be preferable but would consider all options. Two names that have come up are Dr. V. in Staten Island and Dr. C in PA, Staten Island would be a good option if that works due to proximity and he takes my insurance. Dr. C is far but she just seems good from what I have read. Thank you and my heart goes out to anyone whose child is suffering from this insidious disease.

The dosages are listed on the left hand side of the front page of the website: http://buhnerhealinglyme.com/ I have not tried revgenetics thank you, I am going to start her on it

The dosages are listed on the left hand side of the front page of the website: http://buhnerhealinglyme.com/ I have not tried revgenetics thank you, I am going to start her on it

I don't think antibiotics affect the western blot - but maybe someone more experienced will chime in here. My DS8 was on prophylactic amoxicillin for almost a year (for PANDAS), and then 30 days of high dose augmentin and then 30 days of high dose biaxin before we realized it was lyme and ran the western blot. His test came back positive, with 5 IgM bands (some even ++++, and 4 IgG bands. We tested via IgeneX and I contacted them first and asked if he needed to be off antibiotics for the test. They said no, he did not have to be off antibiotics for a western blot. Is there a contact number for Stony brook, that you could ask them directly if the 28 days of amoxicillin will have affected the results? P.S. Our ID doc recommended testing through Stony Brook. He told me to be SURE that on the requisition form the box is checked that says report all bands. Otherwise you will just get a positive or negative without any further information. That was a year ago. Not sure if that's still the case, but you might want to check the form to be certain. Thank you, I will do so. What is ++++? Her first test in 2010 had Band 41 reactive, the most recent test (not Stonybrook)said "present". Is this different?

Thank you, I am trying to find an LLMD. My daughter's symptoms have begun creeping back since the second week off antibiotics.

My 8 y/o is seeing a rheumatologist at Columbia for newly dx Lyme, although I think she has had it since April 2010. She has been having arthritis in her hip and knee, among other things. Doctor is not confident in her 2 bands (IGM 23 and 41 present) Lyme diagnosis and after a 5 week wait from the last day of 28 days of amoxicillin, wants to do a western blot at Stonybrook. Just curious if anyone knows, would the antibiotics likely make the test negative after a 5 week wait? Any feedback is welcome.

If someone has seen Dr. Viconti could you please PM me with your impressions/experiences? My 8 y.o. DD has just been diagnosed with Lyme, 2 weeks after the 4 week course of antibiotics (pediatrican gave 3 but granted my request for 4 weeks) her symptoms are creeping back. Pediatrician has suggested things like "maybe she has migrane headache" and admitted she has little experience with Lyme, so clearly I need an LLMD. I believe she contracted it in April 2010 which is when she had symptoms that I now know are classic Lyme. Any help greatly appreciated, we live in Westchester, New York but will of course travel to get help. Thank you in advance,

Are you familiar with revgenetics.com reseveratrol? I have used before and I am convinced it helped me conceive a healthy baby at 40. I saw this thread and was interested. My 8 y.o. has Lyme and I am looking for ways to help her. What is the children's dosage? Thanks