HanHan

8PM EST/7PM CST/5PM PST the PANDAS Parents Network interviews Dr. Rosario Trifiletti. This is a live, call-in show. (646) 595-4018. Here is the link: http://www.blogtalkradio.com/PPN Call in number: (646) 595-4018.

Does anyone in southeastern MA know of a vaccine friendly(one who is okay with us not vaccinating our children) doctor? Thank you.

I know this is extremely last minute but there is a PANDAS support group meeting at 6:45 at the Rockland Memorial Library.

Where do you live? There is another member here who has a support group in Salem... there is a meeting tonight at 6:45 at the Rockland library

I am looking for people's thoughts and/or past experience with anthestia(sp?), tonsillectomies. My daughter is scheduled to have her tonsils and adnoids out this Thursday. She started clindamycin last Tues. She got sick over weekend. Took her to pedi yesterday and she has strep. She started new abx last night-cephalexin.. My pedi.(she is not a pandas supporter) said she would air on the side of caution and push it back but to check with the ENT. The ENT said he would still go ahead and do it. I heard a lot of dr. don't do it when kids are sick and some do. I am curious also why it is not done when sick. I want to wait. My husband wants to go for it. We need to make a decision by end of day. Ithought other people's experience might help us make a more informed decision. Again, thank you for any thoughts given. It is always helpful and appreciated.

Hi, Just need to vent and see if this has happened to anyone else. My daughter is scheduled for a tonsillectomy this Thur. She has been on Augmentin since Dec. switched to clindamycin last Tuesday. Her throat started hurting on Friday plus head cold, developed rash on Sunday. Just got back from the peditrician and she tested positive for strep on the rapid test. The doctor was just as surprised as I was. Now we have to postpone tx and try a new antibiotic. So frustrated. We have been counting the days until this tonsillectomy praying we all would have some relief afterwards. Thanks for listening.

My daughter started clindamycin 6 days ago to have 10 days before her tonsillectomy. She broke out in a rash all over her back yesterday. We are thinking it might be the clindamycin. Which means she can't have that now for her IV abx during surgery. I was curious what type of iv abx your children had during surgery. Thank you.

I can't come tonight and I so want to. It wouldn't be fair to my husband or other two children to leave him with all 3 kids. My DD would demand all his attention. Looking forward to the tonsillectomy next week. Praying for some relief. I am locked in the bathroom right now with my daughter talking nonstop outside the door. Uggghhh!! Today was one of those yicky days when it all got to me and I got discouraged. tomorrow is a new day though! Have fun tonight. Have a drink for me!

Wednesday and the firside work for me. Unforuntately, we are having a really rough weekend. If things don't subside a little bit, I won't be able to make it. I'll keep my fingers crossed. Tiffany, I did not recieve a link about the conf. Would you mind sending it again? Thanks. I will email the others about Wed. night.

Do you want to or I can send an email out to the support group people. I don't think they all are on latitudes.

Are you concerned about him getting strep while at school? This is my biggest fear. We want to have them done now. We have a May10th appoint. but If she goes back after one week and has 4 weeks left of school she could get exposed. This why we are debating holding off until June although we really want some relief now.

I am in for drinks or dinner or both. I would def. crash that conf. When and where is it? I will go too if I can.

I was thinking the same thing. I was going to mention that in my last post. We could meet somewhere for a drink at night or a coffee during the day just to talk. Let's do it next week. Also, could you let me know who you had for and ENT. I am had one but changed to another bec. he had earlier appointments but I am questioning whether to go to him or not.

Hi, I am taking my daughter to an immunologist for the first time. I saw your post while I was searching. Would you be able to send me the list of quesitons you received from eljomom? I can send you my email. Thank you.

Hi, I am taking my daughter to an immunologist for the first time. I saw your post while I was searching. Would you be able to send me the list of quesitons you received from eljomom? I can send you my email. Thank you.

Did her pandas symptoms go away for those 8 weeks before she got strep and did they come back when she got the strep? I am really bummed we are not meeting again until the 15th. I was looking forward to the meeting I thought was going to be on the 23rd.

We are seeing an immunologist tomorrow for the first time. Don't quite know what to ask. Do any of you have any suggestions? Thanks!

My dd8 is scheduled to have her tonsils out in two weeks. We are now second guessing our timing of it. If we do it in two weeks, she will still have 4 weeks left of school where she will be at the risk of being exposed to strep again and other viruses. Has anyone had their child's tonsils out during the school year and sent them back a week later with good results? Thank you in advance for your thoughts on this. I just thought of one more question. Did your kids have intravenous abx. during the surgery? If not, how was the outcome? thanks!

Hi, I don't have any advice to offer you but just to say I know how you are feeling. My daughter started to go downhill last week and it hasn't stopped. She has been so explosive and I don't know what is causing it. We started her on a new supplement last week-collidal silver- i wonder if that could be it. Anyway, I feel your pain. Hang in there.

Hi, Thanks for the info. on the homeopath and the info. on Dr. walters that I read on the other post. Hope all is well at your house this week. You have your hands full with your oldest being 5. See you in April!

Hi, I am debating whether to see a naturopath or homeopath for my dd8. I was just interested in others experiences with one or the other or both. Thank you.

Hi, could you tell me what llmd stands for? Is it similar to a naturopath? Thank you. Everything my kids are on is reviewed at every bi-monthly LLMD appointment. Initially, specific supplements were suggested by the doctor. Some have worked well and my kids remain on them. Others didn't pan out and we tried other supplements that treated the same issue - e.g. we initially tried alpha lipoic acid for oxidative stress, then tried liposomal glutathione, and are now using resveratrol instead. A few are things I read about on the forum or through research and then asked our doctor about adding them (e.g. milk thistle for the liver - a good thing for those on long term abx and/or ibuprofen). So it's been a combo approach but even if it's something I decide to try on my own (e.g. garlic for yeast), I'll run it by the doctor in a few weeks when we see him. That's one of the things I love about using an integrative doctor. The conventional doctors we once used just shrugged when I asked about supplements, so I felt very alone and worried. Now, we see a doctor who's well versed in supplements and can discuss pros and cons with me. It gives me that safety net. Like S&S - I too now take many of the same things my kids do. It just makes me feel better. I can tell a difference - especially if I stop for a few days.

How do you all know which ones to give? Do you see a naturopath?

There is a meeting this Monday the 19th.

Thank you for sharing your story. It give me hope with my dd8. Congrats on your success and good luck to you.