We are looking to create a document to share at the upcoming NE PANS/PANDAS conference AND with doctors, researchers and the Massachusetts Department of Health to raise awareness of the fact that an incredible number of children are affected with PANS/PANDAS in certain towns on the South Shore of Massachusetts. It seems like a high incidence rate and we want to figure out why and try to get more medical help for our area. We are looking for participants in these South Shore towns for now: Cohasset, Duxbury, Hanover, Hingham, Hull, Kingston, Marshfield, Norwell, Pembroke, and Scituate.
If you have more than one child we need you to re-take the survey for each child. It is the only way we can accurately graph the results. AND we do not know everyone in these towns who have children with PANS/PANDAS and are counting on you to share this survey with people you know. The more information we can gather the better. This is very important.
Please take this survey EVEN if your child has recovered. Here is a link to the survey: http://survey.constantcontact.com/survey/a07e806sw77hkcjmjt2/start
Thank you in advance for your time and participation. The NE PANS/PANDAS Parents Association