Concetta

We have Florida BCBS and we had 5 rounds (should have been 6 but our 17 year old PANDAS son refused to go back!) of IVIG ALL approved. It was listed as being needed done for Immune Defficiency Disorder. We see Dr. Murphy here in FL but she referred us to an Immuniologist who ordered the IVIGs. Good Luck!

Congratulations! I am glad to see that there is hope! I see that you are from FL. We are also. Do you mind if I ask who your Homopath Dr. is?

With our experience with our 17 year old PANDAS child (he was diagnosed at 14) this is an OCD thing. He would need to either have the last say and things needed to be his way. They needed to be in a certain spot or order. Before the IVIG and long term antibiotics it was really bad and these behaviors would spike when he had some sort of infection (strep, sinuses, URI, etc.). I think you are on the right track in checking for any infections. When our son's behavior is off, the first thing we do is bring him to the peditrician to check for illnesses. 9 out of 10 times he has some sort of infection--even times when he's said nothing was "physically" hurting him. We take one day at a time!

Our 17 year old PANDAS child (diagnosed at 14 1/2) is having major depression and anxiety issues. Recently we have seen agression and anger issues arise. During this spike in behavior 2 of our other children had strep throat, one had mono, and just recently we discovered that our PANDAS son has mono! Before we got the mono diagnosis his doctors (we go to All Children's in FL and he sees Dr. Murphy and associates) put him on Risperdal. They said when we go back next week, they might decrease his Celexa and put him on Lithium. When we found out he had mono our pediatrician put him on 5 days of prednisone. Within 24 hours of being on prednisone the "edge" was off and our son even said he felt better (except he is still depressed). My question is, should we still go with putting him on Lithium? His currents meds are: Augmentim XR 2000mg, Celexa 40 mg., Abilify 7.5 mg., Risperdal 2 mg, plus MANY vitamins.