DFW doctors?

[EmersonAilidh]

Positive Lyme Screen (1.16 H), negative Western Blot, positive IGG MycoP (1.95 H), which is only surprising because I've never had pneumonia.. Or so I thought.

Anyway. After all that I've been doing my research & all that, & I want to at least see an Infectious Disease specialist to get tested for co-infections & secondary infections (Babesia, Bartonella, Candida, all that) & possibly even pursue a clinical diagnosis.

Do I need to see a particular Infectious Disease specialist if I'm dealing with Lyme? I know Texas & Lyme aren't friendly, so it seems like I couldn't just go to anyone. Is that the case though? I know of an immunologist in Dallas that does IVIG & PEX, & I've been wondering if he's P.A.N.D.A.S. savvy that he might be open to Lyme too. Could an immunologist run these tests or do anything about them though?

 

Totally clueless here. Excuse my ignorance.

[KeithandElizabeth]

We had an extremely negative experience with an Infectious Disease Specialist. We went due to an elevated Anti-Dnase. We were awaiting our lyme results and not really worried about lyme at the time since our children did not really have the physical lyme symptoms.

 

This doctor went on a tirade about lyme and how he was not a believer in how these doctors are treating lyme, etc....... Anyway, two days later we got the positive lyme results and never went back to that doctor again.

 

I am not saying that this will be the case with all Infectious Disease doctors, but the ILADs doctors are completely amazing at looking at the big picture and analyzing and treating ALL microbes. They will help you with strep and mycoplasma and parasites and viruses, etc.... Have you contacted ILADs yet to see if there was a doctor near you?

 

Elizabeth

[EmersonAilidh]

ILADS, Texas Lyme Disease Association, DFWLyme, & everyone that I've asked on this forum has told me that there is not a single LLMD in Texas. It's illegal to treat chronic Lyme with anything but a typical 4-6 week antibiotic course here. Could I call ahead & just ask how the doctor feels about Lyme? We haves LOTS of ID specialists around here for some reason. & what about the immunologist? I know that Lyme isn't really an immunological condition, but would he be worth a try? If nothing else, I could see him for my P.A.N.D.A.S.

[mama2alex]

Positive Lyme Screen (1.16 H), negative Western Blot, positive IGG MycoP (1.95 H), which is only surprising because I've never had pneumonia.. Or so I thought.

Anyway. After all that I've been doing my research & all that, & I want to at least see an Infectious Disease specialist to get tested for co-infections & secondary infections (Babesia, Bartonella, Candida, all that) & possibly even pursue a clinical diagnosis.

Do I need to see a particular Infectious Disease specialist if I'm dealing with Lyme? I know Texas & Lyme aren't friendly, so it seems like I couldn't just go to anyone. Is that the case though? I know of an immunologist in Dallas that does IVIG & PEX, & I've been wondering if he's P.A.N.D.A.S. savvy that he might be open to Lyme too. Could an immunologist run these tests or do anything about them though?

 

Totally clueless here. Excuse my ignorance.

 

I don't have an answer for you about finding a doctor in Texas, I'm sorry. It sounds like you emailed ILADS and asked them?

 

Anyway, I just wanted to mention that Mycoplasma Pneumonia, according to the LLMD we saw last week, does not present as pneumonia. I asked him this specific question b/c my son has had pneumonia 6 times in 7 years. He also said it's very hard to detect via lab work, so maybe you are "lucky" to have proof of it.

[lss]

Emerson,

 

I am in Dallas and can give you information regarding "that" particular Immunologist. He does not treat Lyme. I have sent you a PM.

 

Linda

[EmersonAilidh]

Mama2Alex - That's what everyone said about scoring positive on my first Lyme test as well. I'm calling a doctor on Tuesday to get some tests run & I'm being sure to have an IGE MycoP thrown in there.

 

& yes, I did. ILADs basically told me that I was SOL. Can I post that on here? Sorry if I can't, but, there's not really any other way to put that. Texas & being proactive about disease prevention/treatment do not go together well.

[PacificMama]

Emerson,

 

What did the Texas lyme association advise you to do as far as finding a doctor?

[EmersonAilidh]

Why is there no "Fast Reply" on this forum like there is on the P.A.N.D.A.S. forum??

 

He said that there were no LLMDs in Texas. He "trusted" that I had been started on antibiotics after a positive reading (hah..), & said that if I wanted further treatment out of state was the only way to go. "There is just too much controversy".