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How long after IVIG did you see results?

lynn2

By lynn2
in PANS / PANDAS (Lyme included)

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How long after IVIG did you see results?  

22 members have voted

  1. 1. How long after first IVIG did it take to get results (defined as 50% improvement of symtoms)?

    • Immediate to first week
      4
    • 2 weeks
      1
    • 3 weeks
      1
    • 4 weeks
      1
    • 5 to 8 weeks
      2
    • more than 8 weeks
      0
    • No good results first treatment but good results subsequent IVIGs
      0
    • No good results
      0

  2. 2. How long on subsequent IVIGs did it take to see good results?

    • Didn't have subsequent
      4
    • Immediate to 2 weeks
      3
    • 2 to 4 weeks
      1
    • 4 to 8 weeks
      1
    • No good results
      0

  3. 3. Do you plan to have additional IVIGs?

    • Yes, for the foreseeable future
      2
    • Yes, at least one
      3
    • Not right now, things are OK
      3
    • No, child is recovered as far as I can tell
      1
    • No, they didn't work.
      0

Recommended Posts

NancyD Mentor

NancyD

Posted
Posted

You may want to determine if the individual had a low-dose infusion (less than 1.5g/kg) or a high-dose infusion (1.5g/kg or higher) because that could change your recovery time and results dramatically. Also, what was the period in between infusions (e.g., 21 days, 28 days, 2 months, 3 months, 6 months, etc.). This too could alter the recovery time and results.

 

Nancy

lynn2 Contributor

lynn2

Posted
  • Author
Posted

You are absolutely right Nancy, especially after reading this morning's posts. Sadly, they only allow 3 questions (although I guess I can see the point in that, it likely would take up a fair amount of bandwidth to set up and record answers to a 50 question quiz :wacko: ) I will try next survey! Or people can respond here if they are interested!

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