How do I get Cunningham Tests?

[momcap]

Is Dr. Cunningham's lab the only one that tests for CaM kinase II? Any other labs doing this test? How do I get this test for my son?

[kimballot]

Is Dr. Cunningham's lab the only one that tests for CaM kinase II? Any other labs doing this test? How do I get this test for my son?

 

Here is some info. on Dr. Cunningham and the test - Dr. Cunningham's email is at the bottom. http://www.pandasresourcenetwork.com/research-programs.html

 

Right now she is asking families to reimburse for the cost of the test, which is $400.

 

If you contact her, she will have a kit sent out to you and you need to find a local lab to draw the blood. Ask them to spin the blood if they can and send it out with an ice pack in the box. Have it drawn on a Monday or Tuesday so it gets to the lab before Saturday!

 

This is not an FDA approved test for PANDAS - it is still in the research stages. If you son is in an exacerbation you might want to do it. I would not do it if my child was not in an exacerbation as it is less likely to show antibodies in the PANDAS range.

[momcap]

Thank you!