Small victories and big victories in the momto2 household

[momto2pandas]

Sorry I lost track of this thread and didn't answer the questions. They got one 1.5 g/kg dose, and then 8 weeks later started 0.75 g/kg every 3-4 weeks. That seems to be holding them at 100% continuously at this point, with no negative reactions of any kind during or after the doses and no detioration right before the next dose, either.

 

Two immunologists both wanted me to get IVIG too, for deficiency not for PANDAS, but Aetna denied it. However, I just checked my numbers again myself and they DO meet Aetna's latest published criteria, so I'll be making another appointment. (Aetna has changed its criteria a couple of times.) I'm feeling great anyway now that I'm not constantly fighting the boys' chronic infections with my own lousy immune response, but long-term I would be happy for the boost in immunity.