Gene testing for gluten sensitivity

[matis_mom]

Mom MD: As you know our son is at about the same phase of recovery as your son. Currently, we have no OCD and many TIC free days (might see a mild flair or tic every couple days) but recently we've had 'what appears' to be an intestinal issue crop up or its always been there unnoticed. Throughout this process I've been a huge poop watcher (I have seen every color under the sun) and Dr. K had express his thought of the 'bacteria' ultimately residing in the gut. We had attempted GF/CF originally but ultimately suspended because we were doing so much and I was just happy to get our son to take what he was taking.

 

We are ruling out additional bacteria's as the cause just to be safe and if that is not the problem we will move forward with scooping to confirm no cysts, polyps or inflammation. Ultimately, I believe we will find similar 'just inflammation' with no cause. Our nutritionist has dealt with this type of thing before and keeps encouraging us to stay the course: hd probiotic, hd b-12, hd bentonite clay and attack it from a gut repair perspective. Like anything, it takes time to heal to gut flora after the extensive damage that has been done from the entire process of illness and recovery (antibiotics). She has stated to me many times the GF/CF diet can help but once the diet is suspended potential problems will re-crop up. SHE KEEPS hounding me about SUCCESSFUL long term health and to focus on repairing the gut flora through PH Balances. Once that occurs (normal PH Balances) the intestines/immunity will start functioning properly again. She has worked with many very sick individuals inclusive of Crohn's and Celiac's.

 

Anyway, we are attacking things from a different perspective and wanted to share what we are doing instead of the GF/CF diet. Roughly, your child's PH balances should be between 5.7 to 6.3 for urine and 6.8 to 7.0 for salvia.... You can purchase the strips for about $12 at iherb. Originally, our son's were way up and we are slowly bringing them into range. He has been doing this program for about 7 months now.

 

P.S. our son has put on five pounds and grown 2 inches since starting this program. His weight at our last IVIG treatment in Jan was 45 pounds.... currently almost 51 pounds and he is now the tallest child in his summer camp!!!! I just know its because he is feeling better and his body is functioning better. AND, our daughter is also on the program has gone from 7% for weight to over the 30% in the same time frame with no IVIG treatments for her.

 

Our nutritionist also states that once the PHs are balanced your natural tendency will be to eat a healthier diet because you crave the right foods. She doesn't even attempt to change diet and she is a nutritionist.

You ladies inspire me! Thanks for all who shared your success with GFCF, and thanks SF MOM for offering a different approach.

I just wanted to share this resource, in case it's useful to some... GAPS stands for GUT AND PSYCHOLOGY SYNDROME

 

http://www.gapsdiet.com/

 

It's a diet design mainly for autistic kids, the initial phase is brutal, but the idea is that you take all the "offenders" out, give the gut a chance to heal, and then slowly start adding other goods. Probiotics and fermented food are an integral part of the diet.

 

As overwhelming as it seems, I think all arrows are pointing in that direction for our family. I think I will just slowly stop buying certain things and replacing them with healthier option. When I get to the point where I have a good arsenal, I'll pull the plug!

 

One big question I have is this: Is it worth doing any of this while on high dose antibiotics???

Edited August 7, 2010 by mati's mom