Steroids during IVIG?

[zazuk2010]

Hi, we are doing IVIG with our ds6 on Tuesday. Had a very bad reaction when we did it last October. Considering steroids to help with any reaction. If any of you have done this can you tell me what kind you used? When you gave it? And how much you gave?

 

The doctor is suggesting Decadron. Said that it is given to patients that have a risk of brain swelling during various treatments. I remember hearing somewhere that Dr. K does not like giving steroids (or extra IV fluids) during the IVIG. Has anyone else heard this? And if you have heard it do you know why he feels that way? I sent him a e-mail (we consulted with him in the beginning) but have not heard back.

 

Thanks for any thoughts. So worried, I am trying to do everything and anything to avoid him having the same terrible reaction as last time. I feel stuck between a rock and a hard place. Need the IVIG to get over the hump but feel like I am hurting him at the same time. Makes me feel sick inside.

 

Best, Kari

[peglem]

You probably want to post this on PANDAS/PITAND

 

Hi, we are doing IVIG with our ds6 on Tuesday. Had a very bad reaction when we did it last October. Considering steroids to help with any reaction. If any of you have done this can you tell me what kind you used? When you gave it? And how much you gave?

 

The doctor is suggesting Decadron. Said that it is given to patients that have a risk of brain swelling during various treatments. I remember hearing somewhere that Dr. K does not like giving steroids (or extra IV fluids) during the IVIG. Has anyone else heard this? And if you have heard it do you know why he feels that way? I sent him a e-mail (we consulted with him in the beginning) but have not heard back.

 

Thanks for any thoughts. So worried, I am trying to do everything and anything to avoid him having the same terrible reaction as last time. I feel stuck between a rock and a hard place. Need the IVIG to get over the hump but feel like I am hurting him at the same time. Makes me feel sick inside.

 

Best, Kari