Scary episode today with PANDAS DS7

[saidie10]

So my DS7 has really been having an increase in his anger and raging behavior. When he gets fixed on something, wants something he can't have, can't decide what to eat for breakfast, or is angry at his brother for something he gets so angry. Fingers clenched and knuckles white, heavy breathing, anger in his eyes, will hit at me, screaming so loudly I swear the next town could hear him, etc. Lately he has been holding his breath until he is beat red and about ready to pass out. I can not get him to stop. Today he finally did pass out. He fell before I could get to him and hit his elbow and lower back on some rocks. He definitely passed out. This new behavior is really scaring me. His IVIG got moved to August 18th. It can't come soon enough.

[PANDASmcnuggetsw/fry/coke]

My heart goes out to you and your family. We are new here, so I have no advice (not that you are asking).

I hope the ivig does wonderful things for your son.

 

PANDASMcNuggets w/fry/coke

[thereishope]

Oh, boy. My son acted the way yours is except he never thought of the holding breath idea.... thank goodness. Does Ibuprofen help with symptoms at all?

Edited July 27, 2010 by Vickie

[Kristy S]

That must have been horrifying. Thank goodness you were able to get an earlier date. I hope you see changes soon after your IVIG appt. Hang in there, it should get better soon.

[kimballot]

So my DS7 has really been having an increase in his anger and raging behavior. When he gets fixed on something, wants something he can't have, can't decide what to eat for breakfast, or is angry at his brother for something he gets so angry. Fingers clenched and knuckles white, heavy breathing, anger in his eyes, will hit at me, screaming so loudly I swear the next town could hear him, etc. Lately he has been holding his breath until he is beat red and about ready to pass out. I can not get him to stop. Today he finally did pass out. He fell before I could get to him and hit his elbow and lower back on some rocks. He definitely passed out. This new behavior is really scaring me. His IVIG got moved to August 18th. It can't come soon enough.

 

Oh my - I am feeling for you. that must have been so scary. Has continued to hold his breath in these instances, or did this experience change that behavior?