justinekno Posted July 21, 2010 Author Report Posted July 21, 2010 They said you do not have to be off of them for the Western Blot or co-infection tests - only the ones with the PCR panel. Oops. I didn't know about the antibiotics. Do you have to be off of them for the other tests also?
PacificMama Posted July 22, 2010 Report Posted July 22, 2010 It is possible to pick up lyme or similar infection in any state -- but certainly more prevalent in certain places. I think for any serious neuro-psych symptoms, Igenex testing should absolutely be done. I don't know your sons symptoms, but if your son primarily has tics, with no other symptoms or illnesses, have you considered that it may be due to allergies -- food or environmental triggers? We are in Southern California, but frequently vacation (especially in the summer) in Arkansas and Philadelphia/NJ and Florida (scattered grandparents). I have been bitten by ticks in Little Rock, but have not gotten infected, as far as I know. My DS9 PANDAS is primarily tics. It has been going on for 5 years. Do you think Lyme testing makes sense? Thanks
lfran Posted July 22, 2010 Report Posted July 22, 2010 We've tried lots over the years. Nothing makes much difference. He has cam Kinase of 139 and anti Dopamine 2 levels of 32000 -- so I think he's definitely in the PANDAS camp. Just looking for other things that might also help. Thanks! It is possible to pick up lyme or similar infection in any state -- but certainly more prevalent in certain places. I think for any serious neuro-psych symptoms, Igenex testing should absolutely be done. I don't know your sons symptoms, but if your son primarily has tics, with no other symptoms or illnesses, have you considered that it may be due to allergies -- food or environmental triggers? We are in Southern California, but frequently vacation (especially in the summer) in Arkansas and Philadelphia/NJ and Florida (scattered grandparents). I have been bitten by ticks in Little Rock, but have not gotten infected, as far as I know. My DS9 PANDAS is primarily tics. It has been going on for 5 years. Do you think Lyme testing makes sense? Thanks
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