Cam k results in

[saidie10]

Ds7 was 164 and ds5 was 179. This is very bittersweet and very scary. My youngest son is the one who we think had his initial onset of symptoms in April. I am quite shocked his was higher than his brothers but relieved as his other bloodwork was not as clear cut for pandas as his older brothers is. So now we are in reactive mode for ds7 and proactive mode for ds5. We need to fix the trainwreck that has occurred in my oldest sons body over the last two years and prevent my younger son from getting any worse. Can you say terrified?

[forjpj]

Understand the mixed feelings, having the same mixed feelings for you and myself. Just figuring out my non-pandas is probably pandas. Got her scores last week, 142, not too high, but high enough. I like how you put it...proactive and reactive. Trying to heal the "sick", and figure out what to do with the "not" so sick one. At least we are pointing in the right direction...I guess.

[kimballot]

Ds7 was 164 and ds5 was 179. This is very bittersweet and very scary. My youngest son is the one who we think had his initial onset of symptoms in April. I am quite shocked his was higher than his brothers but relieved as his other bloodwork was not as clear cut for pandas as his older brothers is. So now we are in reactive mode for ds7 and proactive mode for ds5. We need to fix the trainwreck that has occurred in my oldest sons body over the last two years and prevent my younger son from getting any worse. Can you say terrified?

 

I am glad that you received the results and that they help to explain what you have been experiencing - even though it is not good news. I wish you well as you make a plan and navigate through the system.

[saidie10]

Ds7 was 164 and ds5 was 179. This is very bittersweet and very scary. My youngest son is the one who we think had his initial onset of symptoms in April. I am quite shocked his was higher than his brothers but relieved as his other bloodwork was not as clear cut for pandas as his older brothers is. So now we are in reactive mode for ds7 and proactive mode for ds5. We need to fix the trainwreck that has occurred in my oldest sons body over the last two years and prevent my younger son from getting any worse. Can you say terrified?

 

I am glad that you received the results and that they help to explain what you have been experiencing - even though it is not good news. I wish you well as you make a plan and navigate through the system.

 

Phone consult with Dr. K Wednesday and new Immunologist appt on Thursday. We hope by Friday to have a plan of action!

[kimballot]

Phone consult with Dr. K Wednesday and new Immunologist appt on Thursday. We hope by Friday to have a plan of action!

 

YOU GO GIRL!